Access to health records
One of the 12 statements in our document, Care and treatment: your rights and choices, covering the rights and services that a person with epilepsy can expect.
Care and treatment: your rights and choices says: ‘You have a right to access your own health records.’ To help you understand more about your health, you can ask to see your health records.
The Handbook to the NHS Constitution says:
"You have the right of access to your own health records."
"The NHS commits to share with you any letters sent between clinicians about your care."
Access to records
If you would like to see your own health records, you can ask your clinician (GP or hospital doctor) about this. Your doctors might already copy you in on letters (such as letters after your appointments or referral letters), or you can ask them to if they don't already do this. Being able to see your health records, and any letters about your care, might help you to understand more about your health. It might also help with making decisions about your healthcare, and being able to discuss with your doctors any questions or concerns you have .
Although you have a legal right to access your health records, sometimes you will be charged for this.
The Government’s information strategy, launched in 2012, is a 10-year plan for improving information in the NHS. The strategy includes an aim that everyone should be able to access their GP records, including test results, online by 2015. You can now view parts of your GP records by using GP online services. Find out how to register for GP online services by visiting nhs.uk
The strategy also says that all confidential information in healthcare records must be kept safe and secure, and only used appropriately. It also means that health records are shared appropriately with professionals who might be involved in your care, so that they can offer the best treatment and management of your condition.
Information produced: January 2019
Our document, Care and treatment: your rights and choices explains your rights and the services that you can expect as someone with epilepsy.
Managing your treatment is an important part of managing your epilepsy, and seeing whether your medication is working. This might include having a care plan, including a treatment plan.
The decision whether to start taking anti-epileptic drugs (AEDs) can be difficult, and there is a lot to think about. Here we look at the benefits and risks of taking, or not taking, AEDs.