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We are Epilepsy Society. The UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care.

What we do

Cutting edge research

Epilepsy Society is unique in bringing together experts from around the world to form a powerhouse multidisciplinary team who contribute to a wide ranging spectrum of research.

Advocacy

We are a voice for people with epilepsy, striving to push epilepsy up the political agenda and bring about change at government level.

Leading care provider

Our range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes. 

Epilepsy support

Our confidential epilepsy helpline and online information provide support to people who are affected by epilepsy.

Our research

Genomics

Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme.

Sodium valproate

Sodium valproate is an epilepsy medication prescribed for all seizure types including absence, myoclonus and tonic clonic seizures. New regulations have been introduced by the Medicines and Healthcare products Regulatory Agency (MHRA) around the way in which the drug, sodium valproate is prescribed. Find out about the changes and how they might affect you.

Latest news

Climate change and sleep

Our Director of Genomics, Professor Sanjay Sisodiya, is a co-author of a Nature Review Perspective, exploring how climate change is affecting human health globally. In this Perspective, the research team explored how changing weather patterns resulting from climate change affect sleep.

Epilepsy Society response to government benefit reforms

Although announced plans state that people with severe long-term health conditions will be protected and will not face reassessments, the charity is concerned about how people with epilepsy will be assessed. We urge the government to clarify the impact of its proposals as soon as possible to provide peace of mind to disabled people that benefits will not be withdrawn or frozen before additional support is provided.

1,200 die every year in the UK from epilepsy related deaths

Personal stories

Jade's story

Jade Davies worries about whether her son's health problems may have been caused by her epilepsy medication, even though the drugs she was taking during pregnancy are considered to have a safer profile.

" They couldn't understand why going out into the sunlight would bring on seizures - until our genetic testing revealed the cause of Daniel's epilepsy. "

Genetic testing could mean a new world of personalised treatment that transforms lives. By understanding more about each person’s genes, we will understand more about their epilepsy and how to treat it.

Need to talk about epilepsy?

You can call our

helpline on 01494 601 400,

talk to us via webchat or email us.

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