Carers organisations
Guide to organisations offering support to carers.
Find out about how we give support for carers of people with epilepsy.
Support from the NHS
Information for carers from the NHS
Carers Trust
0300 772 9600 (London office)
0300 772 7701 (Glasgow office)
0300 772 9702 (Cardiff office)
Provides information, an online community, and local
support and services for adult and young carers through
its websites. It also offers advice on money and benefits.
Carers UK
020 7378 4999 (England)
029 2081 1370 (Wales)
0141 378 1065 (Scotland)
02890 439 843 (Northern Ireland)
Campaigns for better support for carers. Provides information, and practical advice and support.
Care Quality Commission
0300 061 6161
Monitors, inspects, and regulates adult social care services and publishes what they find.
Information updated: January 2024
Epilepsy facts and myths
Did you know that the Greek philosopher Hippocrates (460-377 BC) was the first person to think that epilepsy starts in the brain? Find out more interesting facts and debunked myths around epilepsy and seizures.
Epilepsy terminology
There are a number of common misconceptions surrounding epilepsy and epilepsy terminology.
Coming to terms with epilepsy
People can feel differently about their diagnosis; some people come to terms with it quickly, some take longer, and some feel that epilepsy will always be an ongoing issue for them.
Want to know more?
Download our carers factsheet (pdf 661 KB)