Highlighting the challenges faced by people with drug resistant epilepsy.
November is Epilepsy Awareness Month in the USA, so here in the UK we are highlighting the challenges faced by people with drug resistant epilepsy and available treatments. On Friday 20 November, our Medical Director, Professor Ley Sander, will be joined by people with epilepsy to talk about the impact of uncontrolled seizures on radio stations across the country.
We are Epilepsy Society. The UK's leading charity for epilepsy research and support.
Due to current circumstances in relation to the coronavirus some of our services have been reduced with our staff working from home. Despite this our top priority at Epilepsy Society is to support people living with epilepsy. You may notice a slight change in our communications. For the time being, we will focus our efforts on making sure you have all the information you need from us to help you as best we can in the current climate.
Leading care provider
Our range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes.
Cutting edge research
Epilepsy Society's Chalfont Centre is unique in bringing together intellectual capital to form a powerhouse multidisciplinary team who contribute to a wide ranging spectrum of research.
Epilepsy Support
Our confidential epilepsy helpline and online information give help and support to people who are affected by epilepsy.
Advocacy
We are a voice for people with epilepsy, striving to push epilepsy up the political agenda and bring about change at government level.
Medical services
The Chalfont Centre and our Gowers unit lead the way in the most advanced techniques for the diagnosis and treatment of epilepsy.
Care services
We are the leading charity care provider, where people love to work and live. Our wide range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes.
Campaigns
Join us to make your voice heard and help improve the lives of people with epilepsy. Through our advocacy campaigns we've spread awareness of the impact of epilepsy on people's lives and protected people with epilepsy by lobbying government.
Latest news
TikTok to introduce feature that filters photosensitive videos
Epilepsy Society welcomes the news that TikTok is introducing a new feature that filters photosensitive videos. This is a significant step in helping to safeguard users with epilepsy.
Short-term Policy and Public Affairs Manager
We have a short-term opening for a Policy and Public Affairs Manager to support our team with its campaign work over the next two months.
FDA issues alert for lamotrigine in US
The FDA (Food and Drug Administration) in the US have issued an alert for lamotrigine/Lamictal which they say may pose risks for anyone with a heart condition, particularly arrhythmia.
Tell the Law Commission what you think
We're encouraging people with epilepsy and those who support people with epilepsy to let the Law Commission know what they think about their proposals for online harms.
Radio and tv campaign raises awareness of epilepsy
Today we are running a special epilepsy awareness campaign across the country's regional radio and tv stations, focusing on what it is like to live with drug resistant epilepsy and the different treatment options that are available.
Frisium (clobazam) 10mg tablets out of stock
We have been informed by Sanofi that Frisium (clobazam) 10mg tablets will be out of stock from mid-October, with resupply expected in early November.
Our research
Research
The ultimate goals of our current research are to spearhead personalised treatment and to incorporate genomic diagnosis into the NHS for people with epilepsy.
Therapeutic Drug Monitoring (TDM)
Therapeutic drug monitoring (TDM) is an area of clinical chemistry that specialises in measuring medication levels (concentrations) in patients, usually through blood samples but also through saliva samples.
Genomics
Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme.
You can call our helpline on 01494 601 400.
Our Helpline is open five days a week, Monday to Friday 9am to 4pm, (Wednesday 9am to 7.30pm).
You can also reach us by email
helpline@epilepsysociety.org.uk.
Please support us.
In these challenging times, charities like Epilepsy Society rely on donations to ensure vital services for our beneficiaries can continue. If you can spare a donation or pledge a monthly gift, you will be helping to ensure we continue to support everyone affected by epilepsy. Thank you.