Liliane will have up to ten seizures on Christmas day
She has one wish this Christmas… 'For doctors to make everyone with epilepsy better'. Our research aims to transform epilepsy treatment.
We are Epilepsy Society. The UK's leading charity for epilepsy research and support.
Due to current circumstances in relation to the coronavirus some of our services have been reduced with our staff working from home. Despite this our top priority at Epilepsy Society is to support people living with epilepsy. You may notice a slight change in our communications. For the time being, we will focus our efforts on making sure you have all the information you need from us to help you as best we can in the current climate.
Leading care provider
Our range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes.
Cutting edge research
Epilepsy Society's Chalfont Centre is unique in bringing together intellectual capital to form a powerhouse multidisciplinary team who contribute to a wide ranging spectrum of research.
Epilepsy Support
Our confidential epilepsy helpline and online information give help and support to people who are affected by epilepsy.
Advocacy
We are a voice for people with epilepsy, striving to push epilepsy up the political agenda and bring about change at government level.
Liliane’s Christmas wish is for doctors to make everyone with epilepsy better.
Liliane is seven years old and has up to 50 seizures a day. Medication isn’t working and she isn’t alone. Around 200,000 people with epilepsy in the UK do not respond to current treatments leaving them at the mercy of their seizures.
Care services
We are the leading charity care provider, where people love to work and live. Our wide range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes.
Campaigns
Our campaigns team lobby government and decision-makers on the issues that matter to people with epilepsy. From safer medicines for pregnant women to the dangers of online harm, and from medicines supply to public transport access, we raise awareness of the daily challenges facing people with epilepsy – putting your needs at the heart of what we do.
Latest news
Safe Mum, Safe Baby: Write to your MP
We are asking you to write to your local MP, calling for their support for safer medicines for pregnant women with epilepsy.
Hope of seizure freedom for those with drug-resistant epilepsy
A new study has raised hopes that people who live with long-term drug resistant epilepsy may still enjoy a period of seizure freedom in later life. And it has thrown a spotlight on the complex relationship between epilepsy and the ageing process, highlighting the need for more research.
Epilepsy Society needs you
Do you have experience of working in social care, or do you have lived experience of supporting someone with complex care needs? Maybe you have taken early retirement from care work or are thinking of a career supporting people with disabilities. If so, the Epilepsy Society would love to hear from you.
Could better building design help to reduce seizures?
Scientists at the Epilepsy Society are already looking at how climate change is affecting people with severe epilepsy. But now they are also trying to find out how a fluctuation in temperature inside the charity's residential care homes could also impact seizures.
#TheEnvironMentalIssue at COP26
During COP26, we proudly launched EpiCC’s #TheEnvironMentalIssue, a living newspaper made from algae issued in partnership with The Herald (Scotland’s broadsheet newspaper).
Climate change and epilepsy: MP calls for funding
The Epilepsy Society were delighted that our local MP, Sarah Green, chose to mention the effects of climate change on people with epilepsy in her first ever question to the Prime Minister.
Our research
Research
The ultimate goals of our current research are to spearhead personalised treatment and to incorporate genomic diagnosis into the NHS for people with epilepsy.
Therapeutic Drug Monitoring (TDM)
Therapeutic drug monitoring (TDM) is an area of clinical chemistry that specialises in measuring medication levels (concentrations) in patients, usually through blood samples but also through saliva samples.
Genomics
Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme.
You can call our helpline on 01494 601 400.
Our Helpline is open five days a week, Monday to Friday 9am to 4pm, (Wednesday 9am to 7.30pm).
You can also reach us by email
helpline@epilepsysociety.org.uk.