Epilepsy helpline
Call our helpline on 01494 601 400
Epilepsy Society's confidential helpline is available for anyone affected by epilepsy. We welcome calls from people with epilepsy, their families and friends, as well as professionals such as doctors, nurses, care workers, teachers and employers.
Call our helpline on 01494 601 400 or email helpline@epilepsysociety.org.uk
We offer time to talk in confidence about epilepsy
We offer a telephone interpreting service via Language Line
We can give up-to-date information
Our Helpline is open five days a week, Monday to Friday 9am to 4pm, (Wednesday 9am to 7.30pm). You can also reach us by email helpline@epilepsysociety.org.uk.
We offer time to talk in confidence about epilepsy. We can give up-to-date information, and listen to how epilepsy affects you. Sometimes we may ask you questions to help you think things through and talk about what your options may be.
We offer a telephone interpreting service via Language Line and support for callers who have a speech or hearing impairment.
"They are a friendly, listening ear"
"I've needed the support of the helpline many times over the years. They are a friendly, listening ear and give me information I need to help my children understand my condition better." Sarah
All calls to the helpline are confidential
This means we will not share anything about you or what you talk about with anyone else. We may take notes during your call to help us to understand your situation, or to send you any information that you have asked for. Any notes are destroyed after your call.
We do not give advice and we are not medically or legally trained. See our privacy policy for more about the helpline service.
Language line
You can speak to our helpline, through an interpreter, in over 170 different languages with Language Line Solutions. As we are a UK based charity, we are only able to offer this service to people living in the UK.
To use Language Line, call our helpline number (01494 601 400) and tell the helpline operator which language you need.
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The helpline operator will take your telephone number and ask for your first name.
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They will contact Language Line and an interpreter will call you within a few minutes and introduce the helpline operator.
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You will be able to talk to the helpline operator through the interpreter.
All language line interpreters have signed confidentiality agreements.
Quality standard
The helpline is a member of Helplines Partnership. If you would like to give us feedback about your call with the helpline please complete our survey.
Information reviewed February 2022
What help is available?
You are entitled to free prescriptions for your epilepsy medications. You may be able to get financial help towards the cost of travel to medical appointments and to work.
Connecting with others
Many people who contact us say that having someone to talk to, who has epilepsy or knows about epilepsy, can be really helpful and reassuring. It can be an important part of coming to terms with a diagnosis of epilepsy.
Our work
Epilepsy Society is the UK’s leading provider of epilepsy services. Through our cutting edge research, awareness campaigns, information resources and expert care, we work for everyone affected by epilepsy in the UK.