You are here:

News

Published on

Updated:

date:

Party Conferences 2025 – we need you!

Epilepsy Society is hosting events at this year’s Labour and Liberal Democrat party conferences to push epilepsy up the political agenda. We need your help to spread the word. Please let your MP know we are going to be at the party conferences and ask them to attend our meetings or if they are going to be at the Labour Party Conference, come and see us at Stand B7.

date:

Treatment for ultra-rare form of epilepsy shows promising results

A late-stage study has shown promising results for the effectiveness of fenfluramine in people with an ultra-rare form of epilepsy - CDKL5 deficiency disorder (CDD). 

CDD affects approximately one in 40,000 to 60,000 live births. The disorder causes uncontrolled seizures and symptoms usually appear at six weeks of age, alongside learning and developmental issues.

date:

Australian Epilepsy Project using AI to improve outcomes for people with epilepsy

A new project in Australia is using AI to fast-track the time between diagnosis and seizure control, with the aim of improving outcomes for people with epilepsy. Advancements in technology are enabling the Australian Epilepsy Project to crunch decades of data and compare it with a patient's medical imaging, family history, cognitive and genomic markers. 

LET'S STAY IN TOUCH...

We send monthly e-newsletters to keep you informed with tips for managing epilepsy, the latest news, inspirational stories, fundraising opportunities and further information from Epilepsy Society.

Read our privacy policy

It is always your choice as to whether you want to receive information from us. You may opt-out of our marketing communications by clicking the ‘unsubscribe’ link at the end of our marketing emails or through our unsubscribe number 0300 102 0025.