News

Epilepsy Society is hosting events at this year’s Labour and Liberal Democrat party conferences to push epilepsy up the political agenda. We need your help to spread the word. Please let your MP know we are going to be at the party conferences and ask them to attend our meetings or if they are going to be at the Labour Party Conference, come and see us at Stand B7.

Latest research at the Epilepsy Society using pioneering research equipment has shown parallels between people with seizure-linked psychosis and schizophrenia.

A late-stage study has shown promising results for the effectiveness of fenfluramine in people with an ultra-rare form of epilepsy - CDKL5 deficiency disorder (CDD). 

CDD affects approximately one in 40,000 to 60,000 live births. The disorder causes uncontrolled seizures and symptoms usually appear at six weeks of age, alongside learning and developmental issues.

Epilepsy Society has welcomed new plans to boost clinical trials in the UK as part of the NHS 10-year health plan. 

A new project in Australia is using AI to fast-track the time between diagnosis and seizure control, with the aim of improving outcomes for people with epilepsy. Advancements in technology are enabling the Australian Epilepsy Project to crunch decades of data and compare it with a patient's medical imaging, family history, cognitive and genomic markers. 

A survey* carried out by the Epilepsy Society showed that 62 per cent of people with uncontrolled seizures experience an increase in their seizure activity during unusually hot weather.

It is important to make sure that you take sensible precautions to ensure that you stay cool, particularly if you know your epilepsy is sensitive to the heat. Here are a few tips that may help: