Having an electroencephalograph (EEG) at Epilepsy Society

Purple day feels very different this year but that is why it is all the more important to keep talking, says Rachel Perowne, our Director of Medical and People Services Development.

In the first of a new series, Lockdown: Inside story, Nicola Swanborough shares the joys and frustrations of working from home during the Covid-19 crisis.

Find out how you can share your story and experiences of coping with the covid-19 crisis in our new series, Lockdown: Inside story.

Our Information Officer, Julia Dangerfield looks at ways to stay connected while social distancing and shares advice from our psychology team about coping with anxiety.

In our new series, Lockdown: Inside story, NHS keyworker, Emma Griffith talks about changes to her work and the challenge of adapting to medical appointments online.

And so, on a sunny April afternoon in lockdown, the first-ever London marathon for tortoises was born.

In our series, Lockdown: Inside story, Anky Guchait relates her current experinece to a period when she self isolated most of the time due to her seizures.

In our new series, Lockdown: Inside story, freelance journalist Joshua King talks about changes to his work and the challenge of working in a flat which feels crowded.

In our new series, Lockdown: Inside story, Social Media Officer, Paige Dawkins, talks about changes to her work and the challenge of finding a suitable work space alongside two cats.

Our first patron in 1896 was the Duke of York who later became George VI. The Queen is still our patron today.

The festive season can be an exciting time of year but it's important to look after yourself, and get the support you need if you have epilepsy.

Louise is 41 and has had epilepsy since she was 12 years old.

Zoe Gude explains why she would like students to be taught about epilepsy in secondary school.

Health Secretary, Matt Hancock, writes for the Epilepsy Society blog.

Last week, the UK's medical advisory body, NICE, announced it would not be recommending that cannabidiol, a medicinal cannabis in the form of Epidyolex

Medical Director Professor Ley Sander talks about what sudden death in epilepsy means and discusses the risks.

My name is Paige and I have decided to take on the Great North Run for Epilepsy Society.

Hi, I'm Izzy and for the next two weeks I'll be doing work experience with the communications and marketing team at Epilepsy Society.

Maria Pia is Italian and has epilepsy. She explains how painting helps her epilepsy.

Les is taking on a 500 mile walk across Northern Spain for five weeks to raise money for Epilepsy Society.

Actor with epilepsy, Jack Cray, talks about his journey with epilepsy and why he devised his one man show, Jack Cray: The Fittest Guy On The Street.

Latisha Berker-Boyd writes about her experiences with epilepsy and how she has used her epilepsy to influence her marketing agency.

International Women's Day, celebrating women's achievements around the world.

Andy is a support worker and shift leader from one of the residential care homes at Epilepsy Society based in Chalfont St. Peter, Bucks.

On Saturday afternoon, bassist Peter Hook auctioned off his historic collection of guitars, clothing and memorabilia from the archives of Joy Division, the post punk band he co-founded in the ‘70s. Part of the proceeds will go to Epilepsy Society in memory of lead singer, Ian Curtis. Nicola Swanborough, our Communications Manager, was at the auction.

Artist Amanda Smith explains how picking up a paint brush has helped her overcome the anxiety and depression that go hand in hand with her epilepsy

Jasmine Banovic talks about her epilepsy and why she is doing work experience at Epilepsy Society.

Our trustee, Andrew George, explains why he is putting on his walking boots to raise money that will help us to analyse genetic data and increase our understanding of epilepsy.

Nicola Swanborough explores how the village of Chalfont St Peter and Epilepsy Society are deeply connected.

Our Donor Care and Direct Marketing Manager Laura Larrett, lives locally and has worked here for almost 20 years. She talks about the perks of working at Epilepsy Society.

In her New Year blog, our chief executive, Clare Pelham, shares her excitement at learning of the latest scientific discoveries in the field of epilepsy from researchers at Epilepsy Society.

My name is Hayley and I'm a 36 year old secondary school teacher from Essex. I was diagnosed with Juvenile Myclonic Epilepsy about 20 years ago. I've been able to live a pretty normal life since my diagnosis which has included having two children, completing a degree and teaching qualifications.

Amy Frost, 25, has generalised epilepsy. She has been having seizures since she was 11 years old, but was diagnosed at 18. Here she explains how she started using art as a way to cope with her emotions associated with her epilepsy.

In September 2018, we asked our Facebook community what was the one piece of advice they would want to give to someone who had just been diagnosed with epilepsy. Our Marketing and Communications Executive, Paige Dawkins, talks more about the responses we received.

Emma was diagnosed with epilepsy three years ago, but has been seizure free for around a year. She has recently started doing some volunteer work with epilepsy charities such as Epilepsy Action doing awareness presentation training in schools and workplaces and is currently undertaking an accredited volunteer position with them. However, she is keen to expand her volunteer work into sharing her story and is keen to help with raising awareness in any way she can.

Debbie Jackson is currently feeling positive about her epilepsy. She is a personal assistant at a media company in Canary Wharf and feels supported by her boss and colleagues. People have been very good in understanding her condition when she has had a few seizures at work, but this has not always been the case.

Dr Hugh Selsick is a consultant psychiatrist working in sleep medicine, based at the Royal London Hospital for Integrated Medicine. Here he talks about insomnia in people with epilepsy, and how a type of therapy, CBT-i, can be used to combat sleeping problems.

Dr Simona Balestrini, the Muir Maxwell Trust Research Fellow at Epilepsy Society and Honorary Clinical Associate Professor at UCL Queen Square Institute of Neurology, has embarked on a three year project using a pioneering technique to look at the activity of the brain in people with epilepsy. Here she explains what she hopes to achieve in her work with Transcranial Magnetic Stimulation (TMS) used in conjunction with electroencephalography (EEG).

Esther Bailey has been determined to pursue a career in music, even though her VNS (vagal nerve stimulation) affects her voice and means that she can only sing for 10 minutes at a time. Now the 22 year old has recorded her own CD 'Tonic'. Here she talks about her epilepsy and singing.

Mel talks about her experience from being first diagnosed with epilepsy, to becoming pregnant and seeking treatment and support from Epilepsy Society at our Sir William Gowers medical centre.

If you travel on the London Underground or across the capital by bus, you may recognise Tom's face. He has been part of Transport for London's Priority Seating Campaign which aims to raise awareness of hidden disabilities on public transport. Tom has been the face of epilepsy. Here he talks about his epilepsy and the difficulties of taking a priority seat when you are a healthy looking young man.

Professor Matthias Koepp is training to be an adaptive snowsport instructor so that he can share the thrill of the slopes with the residents with epilepsy and other complex needs at Epilepsy Society. Recently, with help from Epilepsy Society's activities team, he took 3 of the residents skiing at Hemel Hempstead's Snow Centre. Watch our video of the day at the bottom of the page.

Zac (12), Finn (15) and Josh (18) are all musicians in their band, Princes to Kings. They want to raise awareness about epilepsy and were inspired to form their band by their eldest sibling, Luke, who has a severe form of epilepsy. We asked Princes to Kings about their experience with epilepsy and about their upcoming headline gig for Purple Day, in support of Epilepsy Society, on March 25.

Adam Franks describes how, with the help of his neurologist, he fulfilled his dream of becoming a professional ice hockey player, in spite of his epilepsy. And he explains how, when his seizures returned, he refused to be beaten but found a new direction for himself in the world of sport.

The International League Against Epilepsy (ILAE) announced some new names for seizures in May 2017. Our Education, Information and Support Services Manager explains the new seizure classifications and the reasons behind the changes. In this blog, you’ll find the new general outline of basic seizure classification.

Deborah

Deborah and her two daughters all live with disabilities and all care for each other. Here she describes how they push forward together, never allowing epilepsy to beat them.

Kat, who has borderline personality disorder, was prescribed sodium valproate as a mood stabiliser for two and a half years. She was informed of the risks associated with sodium valproate during pregnancy and shares her experience:

Gina explains how, as well as learning to be a new mum to her baby son, Charlie, she also had to learn to cope with a diagnosis of epilepsy. But humour and positive vibes are pulling her through.

On 1 June at 2.15pm, just after The Archers, BBC Radio 4 will be broadcasting a new play, Slipping through time. Written by Louise Monaghan, the play follows the story of a young mum with epilepsy. Louise talks to Nicola Swanborough about her research and inspiration for the play.

It's a little known fact that while St. Valentine is widely associated with love and the giving of 'valentines', he is also the patron saint of people with epilepsy.

Our marketing assistant, Helen Skipworth, discusses how simply saying 'I have epilepsy' is only half the battle when it comes to explaining the condition and how it actually feels to have a seizure.

Epilepsy Society content manager Nicola Swanborough reviews Colin Grant's new book, A smell of burning: the story of epilepsy and discusses why the book's most important message could be 'we need to talk.'

Our channel marketing manager, Carl Charlesworth, discusses how one post on Epilepsy Society's Facebook page highlighted how hard it really is to live with epilepsy.

Anthony Linklater, charge nurse at the Sir William Gowers Centre, our UCLH managed epilepsy specialist assessment unit, welcomes new guidance for community nurses who support homeless people with epilepsy.

Epilepsy Society policy advisor Finn O'Dwyer-Cunliffe looks at the issues around sodium valproate and pregnancy and why the government has strengthened its health warnings.

Epilepsy Society's Stella Pearson looks back at our series of Facebook posts on epilepsy terminology and discusses comments and feedback from supporters.

Cyclist Tim Fry had a seizure while out on his bike. His video camera captured the seizure and here Tim is happy to share the footage in the hopes that it will help others to understand just what it is like to have a seizure and the time it can take to recover.

Epilepsy Society's Ben O'Keefe looks back on his video blog series on seizures and analyses the comments and feedback from supporters.

In the fifth of a new series of blogs Epilepsy Society's Ben O'Keefe clears up some misconceptions around epilepsy and the different epileptic seizures that can occur.

This week Katie Hopkins has challenged our 'seize the day' campaign - a joint awareness campaign with River Island and Young Epilepsy. Sarah Vibert, director of external affairs at Epilepsy Society, replies.

After 20 years of epilepsy and a cocktail of medications, Suzanne Elliott has written her first novel, And I Love Her. She explains how writing has helped her shape a new life.

Londoner and former black cab driver Ian Starkey refuses to be beaten by a stroke which left him with reduced mobility and epilepsy. He's written a touching account of his life in a book called From Black Cabbing to Blackouts. This is his story...

Louise Glover was determined not to be defined by her epilepsy. But it was only on safari in South Africa, working with cheetahs and rhinos, that she began to discover who she really is and how her seizures are only a very small part of her. Louise tells her story.

Our digital marketing officer, Carl Charlesworth, went to the premiere of the film Electricity on 18 October at the Vue cinema in Islington, London. Electricity is the powerful story of a young woman's struggle to find her long lost brother while coping with uncontrolled seizures.

Ten million people in Africa are affected by epilepsy, and 80 per cent of those are not treated with readily available modern drugs. Professor Ley Sander, Epilepsy Society’s medical director, describes the challenges of working in Africa.

Emma Friedmann is a parent carer of her 19 year old son who has fetal valproate syndrome. On the 21st February 2018, she attended parliament when the government announced their decision to review handling of concerns around sodium valproate.

The headlines often speak louder than the research, but here Epilepsy Society's medical director, Professor Ley Sander discusses why some women with epilepsy are still prescribed sodium valproate and his hopes that one day genetic testing will help individuals decide whether it is safe to take during pregnancy.

Professor Matthias Koepp is a neurologist at Epilepsy Society. He is also father to two teenage boys, Noah, 16, (left, below) and Joshua, 13. Both of them are keen rugby players. Here he talks about the dilemma of being both a dad and a neurologist on the touchline and about his anxiety following Noah's recent concussion during a game.

Epilepsy Society's chief executive Clare Pelham explains why mothers who have campaigned relentlessly about equality in women's health, are her inspiration as we celebrate #VotesforWomen

Since the pandemic, most of us are having health appointments via video, telephone or online. Our Clinical Lead, Dr Fergus Rugg-Gunn explains how to make the most of your appointment.

Our Helpline Manager, Andree Mayne, talks about anxiety and why it is ok not to be coping.

For the first time ever, Epilepsy Society is sponsoring a garden at the RHS Chelsea Flower Show, designed to shine a spotlight on epilepsy and raise awareness of the condition on a new platform.

Steve Turner explains how he swapped the world of marketing for the life of a support worker at the Epilepsy Society. And how it turned out to be the most fulfilling role of his whole career.

A book about what? Why? Oh! There’s always an oh! I wrote a memoir about living with epilepsy. Living with epilepsy: a contradiction in terms? Would the word ‘surviving’ be more appropriate? Perhaps, for some, for many. When the idea was first suggested to me I laughed out loud. That nervous laugh, the one wreaking of self doubt and ambivalence. Then, after a particularly bad cluster of seizures I decided to give it a go- I had nothing to lose and there’s only so many times you can watch Bruce Willis save the world barefoot.

Here are some Christmas tips from our Education, Information and Support Services Manager, Andrée Mayne, for looking after yourself over the festive period.

Epilepsy midwife Kim Morley looks at what the latest review on risks associated with epilepsy drugs during pregnancy means for women.

Chris Sharp talks about how his epilepsy is triggered by reading and how he cannot share a book with his young son for longer than five minutes

Lauren Sutton talks about her struggle not to become reliant on a medication that could control her seizures but that would pose real risks for any future unborn children.

Lyndsey, 26, describes the impact that her epilepsy has had on her and her little boy, Caelan, and explains why she and her partner have opted for genetic screening before having a second baby by IVF.

Jasmine tells her story about caring for and supporting her partner of three-years, Jordan, who has had epilepsy since he was 16 years-old. Jasmine also talks about her goal to raise awareness and help to support people with epilepsy.

Our Channel Marketing Manager and former student, Carl Charlesworth, gives some useful tips for managing your epilepsy at university.

A wise person once said, "travel is the only thing you buy that makes you richer" and with countries now opening their borders for travel and the government considering travel for the fully vaccinated here's our top tips for flying with epilepsy.

Our Support Services Manager, Andrée Mayne, gives some helpful tips for people with epilepsy who are already working or are starting work.

A year after Baroness Cumberlege published her damning report into the health service, Nicola Swanborough, our Head of External Affairs, explains why history must not be allowed to repeat itself.

In the current heatwave, it is important to make sure that you take sensible precautions to ensure that you stay cool, particularly if you know your epilepsy is sensitive to the heat. We share a few tips that may help.

David, who has had epilepsy since he was four years old, tells his story about his experiences of living in different hospitals and homes throughout the course of his life.

Dan was 21 and serving as a medic in the Royal Navy when he was diagnosed with epilepsy. He was devastated to lose his dream job but is determined not to let epilepsy define him. He is now studying nursing at university and has applied to join the police. He hopes his story will help others, particularly those in the armed forces.

Paige Dawkins, Social Media Officer at the Epilepsy Society, explains why she has started an internal initiative, 'EarthChat', to work with colleagues to raise awareness of the climate crisis and take steps to reduce the charity's impact.

Jonny Anders-Cannon is Director of Care Services at Epilepsy Society. Here he talks about how he started out as a support worker.

Alex, AKA The Fifa Analyst, talks about why in May 2022, he is taking on a 50 mile race to raise funds to support the Epilepsy Society's work.

Sharon Ross has set up her own business ghostwriting autobiographies to enable people to capture and tell their own stories. Here she explains how the government's Access to Work scheme has helped her overcome some of the challenges presented by her epilepsy.

Louise Fein’s second novel, The Hidden Child, is available to buy now. The book is based on in-depth research and the author’s personal experience of having a child with epilepsy. In Louise's blog below she discusses her daughter's epilepsy and the process of researching the novel.

This 25K route zig zags across some of London's most historic bridges, all with their own story to tell, and finishes at the iconic Tower Bridge.

Take part in the full distance from Putney to Henley or a quarter or half section of this beautiful route. There really is a challenge for everyone.

This ‘end of season’ 50km looped route covers some of the best of the Chilterns countryside.

The Brighton Marathon route provides panoramic views of the English Channel and South Downs.

The Edinburgh Marathon route passes some of Edinburgh's most iconic sites and provides breathtaking views of the East Lothian coastline.

Join Team Purple for the 2023 London Marathon - you can apply for one of our charity places or, if you are successful, run with a ballot place!

Take to the skies for us. No experience necessary; must provide own enthusiasm and bravery.

Join over 56,000 runners for the UKs biggest sporting event.

This fantastic 10K event takes you through the centre of Manchester and is now broadcast live on the BBC!

Get on your bike for a good cause and join our biggest ever London to Brighton team!

Take on this iconic cycle challenge between two of the world’s most beautiful cities.

Complete a half-mile, one-mile or two-mile swim in the open water venue for the London 2012 Olympic Games.

Join Team Purple and run through four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens as well as past iconic sites such as Buckingham Palace and the Royal Albert Hall.

This thrilling challenge along one of the great wonders of the world is full of twists, turns, ups and downs.

Machu Picchu is one of the most iconic sights in South America. Trek through this breathtakingly beautiful route through valleys and high passes, scattered with fascinating Inca ruins.

Climb the highest freestanding mountain in the world in support of people with epilepsy.

Join our team of runners in the UKs 2nd largest marathon – and the flattest and fastest marathon route!

No need for headphones at this event! Live entertainment and DJs keep you moving along this vibrant route.

Take place in a running event close to home and fundraise in support of everyone affected by epilepsy.

Take on the TrekFest challenge –With 25km and 50km routes to choose from, whether you walk, jog, or even run you’ll be challenging yourself in one of the UK’s most beautiful national parks – the Brecon Beacons, South Wales.

The VIRTUAL Virgin Money London Marathon gives you the opportunity to run the 26.2 miles from wherever you are in the world.

Discover how your support is changing the lives of people living with epilepsy and hear our ambitious plans for the future.

Challenge 100 is our own virtual challenge that encourages you to complete 100 miles in 100 days!

From cultural landmarks and heritage to the city's quirky and hidden secrets, runners get to explore the capital on a route like no other!

RideLondon takes cyclists on a 100 mile route through London and Essex!

Take part in London Marathon's very own half marathon event through the streets of London!

We are thrilled to announce that, thanks to the generosity of all our amazing supporters, we have raised sufficient funds to be able to open our dedicated epilepsy...

We have been informed by Pfizer that there will be insufficient stocks of Epanutin 30mg/5ml oral suspension, from the week commencing 2 March 2020. This supply issue...

We have been advised by the pharmaceutical company, Sanofi, that there may be shortages of its valproate-based treatments in coming months, due to strike action at...

Congratulations to our Medical Director, Professor Ley Sander, who has been named as the world's leading expert on epilepsy for the eighth year running. And Epilepsy...

In July next year, our neurologist, Dr Simona Balestrini will travel to Geneva for the European Epilepsy Congress. The difference is that this year, rather than...

Are you looking for work? At the Epilepsy Society we have many job opportunities, both temporary and permanent.

With many staff having to self isolate, the Epilepsy Society is looking to recruit temporary and permanent support workers, retired nurses and volunteers.

From 6 April 2020, we will be extending our Helpline opening hours to five days a week. During the Covid-19 lockdown, we have had to make alterations to our phone...

With many staff having to self isolate, the Epilepsy Society is looking to recruit temporary and permanent support workers, retired nurses and volunteers.

Every week we meet with Jonathan VanTam, Deputy Chief Medical Officer, at the Department of Health and Social Care. This is an opportunity for us, along with other...

Due to the UK covid-19 lockdown there have been changes to the support you can access for housing and benefits. This is an opportunity for us to ensure people with...

On 24 and 25 June, we were due to hold our first-ever virtual conference, looking at the potential impact that climate change might have on epilepsy. Sadly we have...

If anyone is struggling to get their prescription for Ethosuximide, they should ask their pharmacist to contact Essential Pharma on 01784 477 167.

An international group of epilepsy specialists from around the world, including Professor Ley Sander, Medical Director at the Epilepsy Society, have drawn up new...

Our Medical Director, Professor Ley Sander, looks at how the Covid-19 pandemic is affecting epilepsy treatment and research, and at how life in lockdown could...

Does having a fever cause you to have a seizure? We are launching a new survey to find out whether a high temperature as part of the flu, puts you at greater risk of...

Monday, 18 May, is the first day of National Epilepsy Week and, poignantly, it also marks the 40th anniversary of the death of post-punk band Joy Division’s front man...

UK charity sees worst ever cyber bullying attack on Twitter as eight-year-old boy with epilepsy and cerebral palsy is targeted.

Every week the nation steps out to celebrate the dedication of the country’s NHS and key workers. But at the beginning of National Epilepsy Week (18-24 May 2020) our...

We are asking you to write to your local MP, asking for their support in including people with photosensitive epilepsy in the government’s Online Harms Bill.

We are thrilled to announce that the streaming of “So This Is Permanent”, a concert to celebrate the life of Joy Division’s front man, Ian Curtis, raised an amazing £...

Epilepsy Society receives a letter from Her Majesty The Queen, thanking staff for their continued support of people with epilepsy across the UK, during these...

Last year we posted a call out on social media, asking people with epilepsy to share their thoughts about what it is like to live with seizures.

On Friday, a young woman, Hari Miller, tweeted a post about an order of service she had discovered in her desk drawer.

Researchers at Stanford University School of Medicine have found that a naturally occurring protein secreted only in discrete areas of the mammalian brain may act as a Valium-like brake on certain types of epileptic seizures.

At least 50 percent of adults with active epilepsy are also living with other health conditions say experts at a leading epilepsy medical research charity.

Update 28/8/2019: Mylan has confirmed that all three strenghts of oxcarbazepine are currently in stock.

A recent decision by Twitter to no longer allow animated PNG image files (APNGs) to be added to tweets has been welcomed by the Epilepsy Society.

UPDATE 10 June 2020 : there has been a delay in the resupply of Accord phenytoin 100mg capsules. They hope to provide an update next week on a new date for resupply. In the meantime, Flynn Pharma, who also supply phenytoin, have sufficient supplies to meet demand.

It was an unexpected surprise for everyone affected by epilepsy when three amazing brothers, Zac, Josh and Finn were the ‘unexpected stars of the show’ on Michael McIntyre’s Big Show.

We have been informed by the Medicines Supply Team at the Department of Health and Social Services that there is a supply issue affecting all strengths of Convulex (valproic acid) capsules.

Epilepsy Society has once again called on the Government to safeguard people with photosensitive epilepsy online, by including them in their Online Harms Bill.

A 24-page document circulated to doctors by the Department of Health and Social Care (DHSC) last week, lists many NHS drugs which are currently in short supply, including some medications for epilepsy.

Teva UK has confirmed that all strengths of Gabitril (5mg, 10mg, 15mg) are now back in stock and that these have been made available to pharmacies across the country.

We have been advised by the pharmaceutical company Pfizer that due to manufacturing delays, Epanutin (phenytoin) Infatabs 50mg are still out of stock.

We have been informed by Teva UK that Gabitril (tiagabine) 10mg strength should be available in pharmacies from the middle of next week.

People with hidden disabilities such as epilepsy, will not be penalized by new Government plans to introduce compulsory photo ID cards for voters before a general election.

Epilepsy Society has welcomed the news that 96 per cent of medicine suppliers in the UK have now responded to the Government about their preparations for exiting the European Union.

On 7 October, The Mirror published an article about the risks surrounding medication shortages.

Update 27/9/19:

Accord have confirmed that levetiracetam 500mg tablets came back into stock on 17th September 2019. However, due to delivery issues with their carrier, a lot of deliveries have yet to be made. They anticipate most outstanding deliveries will be made by mid-next week.

Epilepsy Society's medical director Professor Ley Sander has cautiously welcomed a decision by the European Commission to approve Epidyolex in the treatment of two severe childhood epilepsies.

Epilepsy Society's Chief Executive Clare Pelham says she is pleased to learn that the Government has now signed up eight firms to help bring in vital medicines to the UK after Brexit on 31 October 2019.

UPDATE: Following our earlier news story, we have been informed by Teva UK that all strengths of Gabitril will be out of stock in the UK until the end of October, with possible additional shortages of Gabitril 10mg strength in early 2020.

The Department of Health and Social Services (DHSC) has assured us they are doing everything they can to ensure an uninterrupted supply of medicines following Brexit on 31 October.

As of today, Pfizer have confirmed that Epanutin 30mg/5ml oral suspension is back in stock in the UK.

Recent media reports have suggested that some epilepsy drugs have been impossible to stockpile in advance of a no-deal Brexit.

UPDATE: We have been informed by Sanofi that stock levels of their medicines, including Epilim and Frisium, should be back to normal before the end of August 2019.

UPDATE: Following our earlier news story, we have been informed by Teva UK that all strengths of Gabitril will be out of stock in the UK until the end of October, with possible additional shortages of Gabitril 10mg strength in early 2020.

When bass player Peter Hook dedicated the last song of his set "Love Will Tear Us Apart" to Julie Sims at PennFest, Julie admits it was a very emotional moment.

We have been informed that Milpharm's version of topiramate 25mg tablets are out of stock in the UK.

Diazepam RecTubes (rectal diazepam) 5mg and 10mg doses are out of stock in the UK.

Update 9 August 19:

We are aware that some of you are struggling to gain access to Epanutin (phenytoin) 30mg/5ml oral suspension.

We have been informed by Teva UK that all strengths of Gabitril (tiagabine) tablets are currently out of stock in the UK.

We have been informed by Sanofi that there has been a temporary delay to the delivery of some medicines including Epilim and Frisium.

A coroner in Los Angeles has confirmed that Disney actor Cameron Boyce died of sudden unexpected death in epilepsy.

Epidyolex, an oral solution of cannabidiol, has been recommended for approval for use as an add-on therapy for seizures associated with two severe forms of epilepsy beginning in childhood

Epilepsy Society has hailed actor Idris Elba a superhero after he stopped his new play, Tree - mid-performance - to help a woman in the audience who was having a seizure.

More batches of the epilepsy medication Vimpat (lacosamide) 100mg tablets have been recalled by the Medicines and Healthcare products Regulatory Agency (MHRA).

Sanofi has informed us that Epilim Chronosphere 1000mg Modified Release is temporarily out of stock in the UK.

Primary school pupils across the UK are being given the chance to design a seizure first aid poster to raise awareness of epilepsy. The lucky winner will receive a £25 voucher for themselves and £100 for their science department.

Would you like to invite your MP to a meeting to discuss the potential impact of Brexit - and particularly a no-deal Brexit - on people with epilepsy?

Julie Sims has always been a fan of post-punk band Joy Division. And she has felt a special connection to the band as her young son, Joey had epilepsy like Joy Division's lead singer Ian Curtis.

Epilepsy Society has submitted its response to the Online Harms White Paper, calling on the Government to include safeguarding measures for people with photosensitive epilepsy when they are using social media platforms such as Facebook, Instagram and Twitter.

Budding politician Sydney Joyce, recently shadowed Paula Sherriff MP as part of our 'Me and My Shadow' scheme. Paula is the MP for Dewsbury in Yorkshire and the Chair of the All Party Parliamentary Group on Epilepsy.

A new report released by the World Health Organisation (WHO) calls for action to improve healthcare and reduce stigma and discrimination around epilepsy.

We have been informed by Sanofi that there has been a temporary disruption in the manufacturing of frisium (clobazam) 10mg.

We have been informed by the Medicines and Healthcare products Regulatory Agency (MHRA) that they are supporting a precautionary recall for Vimpat 100mg tablets.

The Government has announced further measures to ensure there will be an uninterrupted supply of medicines if the UK leaves the European Union without a deal on 31 October.

Bus driver Vic Hamilton is hoping everyone will get on board with our new campaign - 'Calm, Cushion, Call' - to teach people how to help someone who is having an epileptic seizure.

Did you know that if you have a side effect from one of your medications, you can report it through the Yellow Card scheme?

This month, the Epilepsy Nurses Association (ESNA) is launching new, best practice training guidelines for professional carers administering buccal (oromucosal) midazolam, emergency medication for people with epilepsy, in the community.

A professor who spent his life championing people with photosensitive epilepsy has been named as one of the nation's top 100 lifesavers from across UK universities.

A huge congratulations to our trustee Andrew George, who completed the London 2 Brighton challenge on 25-26 May during National Epilepsy Week. He took on the challenge to raise money to fund a bioinformatician for a month to carry out vital epilepsy research.

When 28-year-old Sean Hamilton had a seizure on an escalator at London Underground, it was only the quick reactions of his dad, Vic, that stopped him falling on to other commuters at the busy tube station.

Three of the world's leading epilepsy specialists have warned that climate change may be damaging the health of their patients.

We have been informed by Teva UK that all formulations of Zonisamide are temporarily out of stock in the UK.

We have been informed by Sanofi that there may be problems with the supply of two forms of Epilim (sodium valproate) over the next 10 days.

We have been advised by the pharmaceutical company Pfizer that due to manufacturing delays, the shortage of Epanutin (phenytoin) Infatabs 50mg will now last from 1 May through to November 2019.

Expert consultants and radiographers in epilepsy congregated at Epilepsy Society's prestigious Chalfont Centre on 28 February 2019 to attend the 3rd ILAE British Branch Epilepsy Neuroimaging course.

Long-time epilepsy volunteer Monica Kendall, met HM The Queen when she enjoyed a visit to Windsor Castle on 2 April 2019.

Almost eight months ago, Natasha McQuinn, 30, collapsed at home onto a boiling hot radiator during a seizure and burnt all of her back.

Epilepsy Society is calling on the Government to safeguard people with photosensitive epilepsy online by regulating flashing images that could induce a seizure.

Health minister Stephen Hammond MP has sent the following statement to Epilepsy Society in response to our call for more information about medicines shortages. Mr Hammond is replying on behalf of Health Secretary Matt Hancock.

We have been informed by pharmaceutical company Actavis (which was recently acquired by Teva UK), that due to wholesaler issues, Zonisamide tablets in 25mg and 100mg are out of stock until early May 2019.

Epilepsy Society is calling on Health Secretary Matt Hancock to commission an urgent review of the medicines supply chain as patients are forced to trawl around pharmacies in search of their drugs.

We are receiving many calls to our Helpline alongside online enquiries from people who are experiencing difficulties in getting their epilepsy medication. Here, our medical director Professor Ley Sander looks at the problem and explains what you can do to manage the situation and how the Government is tackling current shortages.

New guidance brings greater clarity for doctors and patients in implementing MHRA regulations around use of sodium valproate for women and girls of childbearing age with epilepsy
Charity hopes guidance will help to address some of the complex situations that arise in individual cases

We have been advised by the pharmaceutical company Pfizer that due to manufacturing delays there will be a shortage of Epanutin (phenytoin) Infatabs 50mg from 1 May through to July or August 2019.

Teva UK are discontinuing their version of Oxcarbazepine 150mg tablets in October 2019. There is currently stock available. They have already discontinued their 300mg and 600mg tablets.

Following on from our news story on 1 February 2019, we have been informed by Sanofi that all doses and formulations of Epilim (sodium valproate) are currently in stock in the UK.

If you have been prescribed gabapentin (Neurontin) or pregabalin (Alzain or Lyrica), it is important to be aware that the law is changing from 1 April 2019 and these medications are being re-classified as controlled drugs.

Update: 12 March 2019

Our Marketing and Communications Executive, Paige Dawkins, went to see Dangerous Giant Animals at the weekend. Here, she reviews the play.

Some dosages of Topamax (topiramate), 25mg and 100mg are currently out of stock in the UK.

Neurontin (gabapentin) 400mg capsules are currently out of stock in the UK. The manufacturer, Pfizer, says this is due to a problem with the packaging.

For the second year running we are launching our Me and My Shadow scheme, giving young women with epilepsy the chance to shadow women in a range of different careers.

Legendary bassist Peter Hook is helping to support people with epilepsy by auctioning all of his guitars and memorabilia from his Joy Division and New Order days.

If you tuned into Woman's Hour on BBC Radio 4 this morning, you would have heard one of our Consultant Neurologists, Dr Simona Balestrini, discussing how Epilepsy Society's new €2.5 million genomics research partnership with biopharmaceutical UCB, could bring new hope to people with epilepsy.

Health Secretary Matt Hancock has endorsed a unique partnership forged by UK charity Epilepsy Society and Brussels based biopharmaceutical company, UCB.

We have been informed by the Department of Health and Social Care that some preparations of Carbagen (carbamazepine), manufactured by Mylan, will be unavailable until mid to late 2019.

Update 15/2/19 - We have been informed by Sanofi that all doses and formulations of Epilim are in stock this week, apart from Epilim Chronosphere MR 500mg Modified Release Granules.

A big thank you to our Director of Genomics, Professor Sanjay Sisodiya and two of his colleagues, who ran the Royal Parks Half Marathon to raise money for one of our clinics.

Epilepsy Society's medical director, Professor Ley Sander is advising people with epilepsy not to stockpile medication themselves.

Children aged four years and older in Wales will have access to the anti-epileptic drug brivaracetam as a new treatment option.

Epilepsy Society is pleased to hear that the Government has promised to exempt people with epilepsy from its most recent plans for potential post-Brexit medicine shortages. The Department of Health and Social Care is proposing to give pharmacists power to dispense alternative drugs if those prescribed by GPs are in short supply after Britain leaves the EU.

Two new treatments are being developed for people with epilepsy, that may offer hope of better seizure control in the future.

A recent study shows a bio-marker based blood test can accurately distinguish epilepsy seizures from psychogenic non-epileptic seizures (PNES).

Carbagen (carbamazepine) and Carbagen SR (prolonged-release carbamazepine) are out of stock in the UK. Mylan who manufacture both drugs, say this is due to a supply constraint.

Epilim Chrono 500mg tablets are temporarily out of stock in the UK. Sanofi who manufacture Epilim Chrono, say this is due to a high demand.

Researchers across the globe have thrown new light on the important role that genetics play in some of the most common epilepsies.

Children aged four years and older in Scotland will have access to an anti-epileptic drug (AED) brivaracetam as a new treatment option. Pharmaceutical company UCB announced on 10 December that the Scottish Medicines Consortium has accepted expanding the use of the drug.

We are thrilled to announce that our Chief Executive Officer, Clare Pelham, has won a CEO Today United Kingdom Award 2018 for her work in the charity sector.

More than 800 DNA samples from Epilepsy Society have now been sequenced as part of Genomics England's landmark 100,000 Genomes Project. This means our researchers, bioinformaticians and clinicians are at the exciting stage of being able to analyse the new data, bringing hope of groundbreaking results in the diagnosis, treatment and understanding of epilepsy.

Luke Berry, 20, who has had epilepsy since the age of nine, is finally realising his long-held dream of working in radio with the BBC.

As of this morning (1 November), specialist doctors in the UK can now prescribe cannabis-based medicines to patients with a limited number of conditions. This includes children with severe epilepsy syndromes.

A pioneering new approach being trialled at University College London Hospital (UCLH) hopes to make epilepsy surgery safer and easier. A team of researchers, clinicians and engineers from Epilepsy Society, UCLH, UCL and King’s College London have developed a world-leading software system called EpiNav, which stands for epilepsy navigation, and their work is being featured on today’s episode (10 October 2018) of the BBC’s Trust Me I’m a Doctor.

Peter Hook has recently announced two special concerts with his band, The Light, to perform 'Joy Division: A Celebration' to commemorate four decades of the group's and Ian Curtis' continuing influence.

An independent safety review into the epilepsy medication, sodium valproate, is now officially open and has put out a 'call for evidence' from those affected by the drug.

Teva UK have announced that they are discontinuing the following versions of Teva lamotrigine, although some will still be available for a limited period next year, as shown below:

Media reports in recent weeks have indicated that some UK pharmaceutical companies are stockpiling medicines in preparation for a possible hard Brexit in 2019.

Please note that there are further updates to this news story which you can read at the links below:
Specialist doctors can now prescribe medicinal cannabis for epilepsy (1 November 2018)
Medicinal cannabis can now be prescribed by specialists for epilepsy (12 October 2018)

A decision by the Competition and Markets Authority to fine Pfizer and Flynn Pharma a total of £90m for overcharging for an epilepsy drug, has been remitted back to the CMA after a tribunal ruled against the government watchdog's decision.

Our chief executive Clare Pelham, a member of the Commission on Human Medicines' Sodium Valproate Expert Working Group, commented on the news of the new regulations surrounding sodium valproate.

Epilepsy Society today welcomes new regulatory measures to stop babies being born with avoidable disabilities after being exposed to the drug, sodium valproate, in the womb.

This week, for the first time ever, epilepsy is featuring as part of a high profile poster campaign across London's underground and bus networks.

New measures announced to stop babies being exposed to valproate in the womb
Valproate medicines are available in the UK under brand names such as Epilim, Epival, Episenta, Convulex and Orlept
No girl or woman should stop taking valproate without first consulting her doctor.

Epilepsy Society's chief executive Clare Pelham has praised the Government's decision to announce a forward-looking review that will address the way the healthcare system has handled the concerns of patients in its care and make certain that lessons are learned and history does not repeat itself.

New measures to avoid the exposure of unborn babies to the epilepsy drug sodium valproate have been announced by the safety committee of the European Medicines Agency (EMA).

Epilepsy Society's chief executive Clare Pelham has joined the Sodium Valproate Expert Working Group which supports the Government's Commission on Human Medicines.

Although we could not see them as we watched today's sodium valproate debate via Parliament Live TV, the presence of three women -Janet Williams, Emma Murphy and Deborah Mann - as they sat in the public gallery, was very much felt in the House of Commons.

Epilepsy Society's chief executive, Clare Pelham, has welcomed a second letter from the Department of Health in response to her letter to health secretary Jeremy Hunt, calling for mandatory reviews for women and girls of childbearing age taking sodium valproate.

Arlene Foster, leader of the Democratic Unionist Party and First Minister of Northern Ireland has pledged her support for Epilepsy Society's campaign to ensure mandatory reviews for all women and girls of childbearing who take sodium valproate.

On 21 September 2017, Epilepsy Society's chief executive, Clare Pelham, wrote to health secretary Jeremy Hunt asking him to introduce mandatory annual reviews for any girl or woman of childbearing age who is taking the epilepsy drug sodium valproate.

Following last month's public hearing into the epilepsy drug sodium valproate, the European Medicines Agency(EMA) has now published a full summary report.

Watch and listen to Epilepsy Society's CEO Clare Pelham discussing our sodium valproate survey and the European Medicine's Agency public hearing into the epilepsy drug on various BBC News programmes over the last few days.

Almost 1 in 5 (18%) women currently taking the epilepsy medication sodium valproate do not know it can harm the development and physical health of their unborn child should they become pregnant
more than a quarter (28%) of women taking the epilepsy drug have not been given information about risks for their unborn child
more than two thirds (68%) of women taking the epilepsy drug have not received specially produced valproate materials released in February 2016
Charities call on government to make annual reviews mandatory for women taking the drug

No need to panic over current shortages of some epilepsy medications
Swiching between different types of levtiracetam should not be a problem
Switching to a different type of clobazam should be done in consultation with a doctor
Latest update on supply problems

As dry January ends, Epilepsy Society is urging the public to think twice before assuming that a person who is staggering around in a confused state, is drunk.

Women with epilepsy are being advised to consult their doctor, pharmacist or specialist nurse if they are using the morning-after-pill containing levonorgestrel.

The epilepsy drug Trobalt, also known as retigabine, is to be discontinued and will no longer be available after June 2017.

A study has found that headaches cause a ‘burden’ to the quality of life of many people with epilepsy.

There appears to be a correlation between epilepsy and smoking, a study of people living in French-speaking Switzerland has found.

The suicide rate among people with epilepsy has been found to be 22 per cent higher than in the general population in a study by the Centers for Disease Control and Prevention (CDC) in the United States.

Epilepsy Society's medical director Professor Ley Sander has advised women who are taking pregabalin not to panic over new research which suggests the epilepsy drug could pose risks for an unborn child if taken during pregnancy.

A new study has shown that babies born to women who are taking the epilepsy drug lamotrigine, do not have a significantly increased risk of birth defects such as cleft lip, cleft palate or club foot.

An article published in the journal Epilepsy & Behaviour aims to determine whether or not St Paul of Tarsus, writer of several New Testament books, and Joan of Arc, 15th Century French military leader, had epilepsy.

Here are 12 things you may not know about this misunderstood condition.

Epilepsy Society has welcomed a Department of Health initiative to introduce better labeling on the packaging of the anti-epileptic drug sodium valproate, warning women and healthcare professionals of the risks associated with the medication.

Epilepsy Society has reminded people whose seizures are triggered by flashing lights to take extra care as the winter season of parties and celebrations begins. Epilepsy Society’s consultant neurologist Dr Fergus Rugg-Gunn talks about ways to minimise your risk if you have photosensitive epilepsy.

Epilepsy Society has welcomed the findings of a new study which shows that the performance of the generic version of lamotrigine is equivalent to the original branded version of the the anti-epileptic medication.

Bright light therapy – commonly used to treat seasonal affective disorder – can reduce levels of depression and anxiety in patients with epilepsy, according to new research published online today by the British Journal of Psychiatry. Epilepsy Society’s consultant neuropsychologist Dr Sallie Baxendale was the lead researcher in the study of more than 100 patients with focal epilepsy not controlled by medication

Exciting new research that involves using a protein in worms to suppress seizures, could spell hope in the future for thousands of people with epilepsy.

Are you a woman or girl under the age of 55 who is taking, or has taken, sodium valproate since 1 August 2018?

A GP practice in London could be closed down after inspectors found that staff had failed to warn women of the risks around the epilepsy medication sodium valproate during pregnancy.

MPs to debate safety issues around sodium valproate Thursday 19 October 2017

Contact your MP to encourage them to take part in the debate

Watch the debate live on Parliament Live TV.

The BBC is planning to run several news broadcasts about the European Medicines Agency (EMA) public hearing into sodium valproate taking place in London on 26 September 2017.

Results of a Europe-wide review of the epilepsy drug valproate, known to cause birth defects, has resulted in the Government sending strengthened warnings to all prescribing doctors and pharmacists.

The BBC yesterday (Tuesday 9 June 2020) carried a report highlighting concerns that stockpiles of some medications in the UK have been exhausted. There are worries that this could mean there will not be time to replenish these stocks in case the government fails to strike a trade deal with the European Union at the end of the year.

Prime Minister Boris Johnson has made a firm commitment to raise our concerns about malicious tweets designed to provoke seizures in people with photosensitive epilepsy, with Secretary of State for Digital, Culture, Media and Sport, Oliver Dowden.

We have been informed by UCB that Vimpat (lacosamide) 50mg x 14 tablets are likely to be out of stock within the next three weeks. The shortage is expected to last for a two-three week period.

This was the joyful moment when nine-year-old Zach Eagling crossed the finishing line to complete his #twopointsix challenge, raising a staggering £11,500 for the Epilepsy Society.

PLEASE NOTE: Women and girls should not stop taking valproate without first discussing it with their doctor. Up-to-date information and guidance on valproate use can be found here. 

After a two-year review led by Baroness Cumberlege, right, the Independent Medicines and Medical Devices Safety Review has today published its report into three medical interventions: the epilepsy medication, sodium valproate; the hormone pregnancy test, Primodos;  and pelvic mesh implants.

Following the publication of the Independent Medicines and Medical Devices Safety Review, Clare Pelham, Chief Executive at the Epilepsy Society, says the appointment of a Patient Safety Commissioner and radical change at the regulatory body, the MHRA, are top priorities.

Wearing a face covering or mask is to become mandatory in shops in England from 24 July 2020. It is already mandatory on public transport. So what does this mean for people with epilepsy?

Twitter have taken the decision to ban three key search terms, ‘epileptic, photosensitive and photosensitivity’ from its GIF search function, after internet trolls persistently used them to access flashing images with the intent of triggering seizures in people with epilepsy.

In England, you now must wear a face covering by law in many indoor settings. This is to help control the spread of the Covid-19 virus. There are exemptions to this, for example if you feel it will cause you distress. If this is the case for you, you may wish to carry an exemption card with you.

Prime Minister Boris Johnson and his Secretary of State Oliver Dowden have promised that action will be taken to address the issue of internet trolls sending malicious tweets to trigger seizures in people with epilepsy.

Back in June we reported a short-term stock outage of Vimpat (lacosamide) 50mg x 14 tablets. This was due to delays in production at the pharmaceutical company’s external manufacturing site.

We have received the following updates on Epanutin (phenytoin).

On Thursday 16 July 2020 during the Ministerial Statement Coronavirus Update Dame Cheryl Gillan asked Matt Hancock if the Department for Health and Social Care would consider including people with epilepsy in the clinically vulnerable category for coronavirus and the flu

Neuropsychologist Sallie Baxendale, based at Epilepsy Society, has scooped a prestigious international award for the significant difference she has made to the treatment and care of people with epilepsy.

We have been informed by Teva that Zonisamide 50mg and 100mg are currently out of stock and stock is expected to return in December 2020. This is due to a manufacturing issue.

Thank you to everyone who took part in our recent surveys looking at the impact of excessively high temperatures on seizures. These have provided us with some invaluable insight into the link between the two and will help to influence our work as we experience increasingly hot summers.

New research using an Apple Watch app to track seizures in people with epilepsy has found that the most common triggers are often stress and missed sleep.

The GIF library GIPHY have taken prompt action to reduce the risk for people with photosensitive epilepsy online, following Epilepsy Society’s concerns about harmful content in the library.

Epilepsy Society welcomes new proposals from the Law Commission to reform the law and better protect people from online harm. The news follows an ongoing campaign by the charity to make it a criminal offence to target people with epilepsy with malicious posts designed to trigger seizures.

Criminal Law Commissioner, Professor Penney Lewis, has warned that anyone who sends flashing images to people with epilepsy, provoking a seizure, could potentially be guilty of an offence such as assault causing actual bodily harm.

We have been informed that the MHRA has recalled three batches of Epilim 500mg Gastro-Resistant tablets from pharmacies.

We have been informed by Teva that Zonisamide 50mg and 100mg are currently out of stock and stock is expected to return in December 2020. This is due to a manufacturing issue.

Epilepsy Society has stressed that anti-psychotic drugs should only ever be prescribed for people with epilepsy where essential. The charity's Medical Director Professor Ley Sander said this was particularly important when prescribing for those who also had learning difficulties.

We have been informed by Sanofi that Frisium (clobazam) 10mg tablets will be out of stock from mid-October, with resupply expected in early November.

We're encouraging people with epilepsy and those who support people with epilepsy to let the Law Commission know what they think about their proposals for online harms.

The FDA (Food and Drug Administration) in the US have issued an alert for lamotrigine/Lamictal which they say may pose risks for anyone with a heart condition, particularly arrhythmia.

We have a short-term opening for a Policy and Public Affairs Manager to support our team with its campaign work over the next two months.

Today we are running a special epilepsy awareness campaign across the country's regional radio and tv stations, focusing on what it is like to live with drug resistant epilepsy and the different treatment options that are available.

Epilepsy Society welcomes the news that TikTok is introducing a new feature that filters photosensitive videos. This is a significant step in helping to safeguard users with epilepsy.

The Epilepsy Society is once again thrilled to be teaming up with bass legend Peter Hook to raise money in support of people with epilepsy. Hooky is auctioning off one of his limited edition Signature BB Bass guitars, donated by Yamaha Guitars.

Epilepsy Society’s Medical Director, Professor Ley Sander has reassured people with epilepsy that they should feel confident in having the new Covid-19 vaccine.

A Government decision to impose tough financial penalties on social media companies that do not safeguard their users, has been welcomed by the Epilepsy Society.

Epilepsy Society’s Medical Director, Professor Ley Sander is once again advising people to think ahead and make sure they do not leave getting their medication or healthcare appointment to the last minute. He is recommending that people should also avoid trying to stockpile their medication.

Congratulations to our Medical Director, Professor Ley Sander, who has been named as the world's leading expert on epilepsy for the ninth year running. And Epilepsy Society has been ranked as the top epilepsy research centre in the world - again for the ninth year in a row.

For nearly seven decades, the Queen has been patron of the Epilepsy Society. This year we have recorded a special Christmas message for Her Majesty via Zoom, with messages from some of the many people across the UK whose lives have been changed by the charity.

Members of the Gerrards Cross and Fulmer Netball Team have trekked an incredible 7,542 miles in a virtual challenge to reach Lapland before Christmas. And on route, they have already raised a fantastic £850 for their local charity, the Epilepsy Society.

We have been informed by Teva UK that Zonisamide 25/50/100mg is currently out of stock.

A new review has been published looking at risks associated with the most commonly prescribed anti-epileptic medications during pregnancy.

This is our amazing research team who put their day jobs on hold to help deliver the Covid-19 vaccine to almost all of the residents living at the Epilepsy Society.

All the most frequently asked questions about Covid-19 and the vaccines, with regularly updated information from the Department of Health and Social Care.

We have been informed by Teva UK that Zonisamide 25/50/100mg is currently out of stock.

The Epilepsy Society has expressed alarm about the doubling of Sudden Unexpected Death in Epilepsy (SUDEP) in pregnant and postnatal women.

Epilepsy Society is pleased to be partnering with Hidden Disabilities Sunflower, the organisation behind the sunflower lanyard, to mark International Epilepsy Day on 8 February 2021.

Thirty-one-year-old Bradford man, Elliott Horan  is planning to cycle 100 miles in four days to raise funds for the Epilepsy Society and to show how keeping fit can help with the depression and anxiety that often accompany his epilepsy.

Our Medical Director, Professor Ley Sander and our Social Media Officer, Paige Dawkins, went live on Facebook with a Q&A about the Covid-19 vaccine and epilepsy, answering some FAQs and live questions from the Facebook stream on the day.

Please read our update from the DHSC, reassuring people with epilepsy that they are included in priority group 6 for the Covid-19 vaccine. Also included is our downloadable vaccine letter to give to your GP.

Following publication of a review highlighting the risks linked to some epilepsy medications during pregnancy, our Medical Director, Professor Ley Sander, has written a letter to support women and girls requesting a review of their medication and an urgent referral to a neurologist if they are planning to become pregnant.

The Epilepsy Society has welcomed the publication of data from a new valproate registry but called for it to be expanded to include all anti-epilepsy drugs.

We are thrilled to see that the Daily Express is today (19 February 2021) backing our Zach’s Law campaign to bring to justice internet trolls who send flashing images to people with epilepsy in order to trigger seizures.

The Government has promised that Ofcom will have “a suite of enforcement powers” to tackle online abuse against people with epilepsy.

People with epilepsy can now book their Covid-19 vaccine direct through the NHS. Find out how.

The House of Lords has discussed the need for a redress scheme for mothers and babies harmed by sodium valproate.

Epilepsy Society’s Medical Director, Professor Ley Sander, has stressed the importance of people with epilepsy receiving the Covid-19 vaccine.

Daily Express columnist and tv presenter, Richard Madeley has called for internet trolls to be prosecuted for targeting Epilepsy Society campaigner, nine-year-old Zach Eagling.

We are asking you to write to your local MP, calling for their support for safer medicines for pregnant women with epilepsy.

Epilepsy Society pays tribute to Dame Cheryl Gillan MP following her sad death at the weekend.

Epilepsy Society is launching a new campaign - ‘Safe Mum, Safe Baby’ - calling for safer epilepsy medications in pregnancy.

Thank you to everyone who took part in our survey – ‘It’s all about you’. Over 1,000 people completed the survey, including those with epilepsy and those affected by the condition.

As the nation prepares to say farewell to His Royal Highness Prince Philip, our Chief Executive, Clare Pelham, reflects on how love, death and even epilepsy have no respect for castles and palaces. Clare will be talking on BBC Radio 5 Live on Saturday morning from 6.30am.

The Epilepsy Society has welcomed the Health Secretary's promise to invest in cutting-edge research which could lead to safer medicines and better treatments for a variety of conditions, including epilepsy.

Footballers are putting up a united front alongside people with epilepsy as they ask Prince William, president of the Football Association, for his support in tackling internet trolls.

We know from calls to our Helpline, and through conversation on our social media platforms, that some people are sharing concerns about having their second dose of the Covid-19 vaccine.

The Epilepsy Society has welcomed the publication of a new Bill which aims to promote online safety, but we believe more needs to be done to protect people with epilepsy from internet trolling.

MPs, scientists and clinicians today backed Epilepsy Society’s call for the government to stop babies from being born with preventable disabilities, by investing more money into urgent research. 

Two new initiatives have been launched to help ensure that all women with epilepsy, of child-bearing age, are aware of the risks associated with the medication valproate, during pregnancy.

Last night, in the House of Commons, Emma Hardy MP called on the government to back the Epilepsy Society’s campaign for funding into vital research into safer epilepsy medications during pregnancy.

Callers to our Helpline have expressed concerns that the latest version of the patient information leaflet for the Covid-19 Astra Zeneca vaccine, mentions seizures as a possible side effect.

We are thrilled to see that the Law Commission is calling on the government to introduce a specific offence to deal with flashing images posted on social media to trigger seizures in people with epilepsy.

We are incredibly proud to announce that 10-year-old Zach Eagling – the figurehead of our Zach’s Law campaign – has been shortlisted as an Unsung Hero in the Third Sector Excellence Awards.

Pfizer was fined a record £84.2m by the Competition and Markets Authority (CMA) for increasing the price of its phenytoin sodium capsules by between 2,300-2,600 per cent over night in 2012. The CMA also fined distributor Flynn Pharma £5.2 million after it accused the pair of "excessive and unfair" pricing for the vital medicine used by around 48,000 patients in the UK.

Epilepsy Society is working in partnership with Healthinote - a digital platform for doctors, nurses and pharmacists to share personalised, trusted health information with patients.

Twelve scientists from the Epilepsy Society and UCL are going the extra mile to raise money for a vital new piece of equipment that will help in the treatment of people with epilepsy.

The Epilepsy Society is encouraging people affected by epilepsy to submit their views on online safety to an important parliamentary committee.

At the Epilepsy Society, our vision is for a world where people with epilepsy lead the lives they want to lead. This year, following a major survey of people affected by epilepsy, we have become clearer in describing that Vision and setting out how we intend   to make it  happen.

Ten-year-old epilepsy campaigner, Zach Eagling, was honoured at a prestigious charity awards ceremony in central London in September 2021.

We have had a lot of calls to our helpline from people with epilepsy who meet the DVLA standards and may be able to drive, but are waiting for their application to the DVLA to be processed.

One of the Epilepsy Society's three core pillars, alongside research and care, is advocacy – campaigning in support of the issues that matter most to people with epilepsy. This summer and early autumn, we have continued to campaign on a number of key issues.

On 25 November 2021, EpiCC – Epilepsy Climate Change – held its first ever virtual conference ‘Epilepsy in change’ to address the links between climate change and epilepsy and how we might all take action.

Following the tragic death of Sir David Amess MP, our Chief Executive, Clare Pelham, issued the following statement.

The Covid-19 booster vaccine is now available on the NHS for those who are most at risk from the virus and have had two doses of the vaccination at least six months ago. This includes people with epilepsy.

Did you know that seeing your doctor via a virtual clinic, rather than face-to-face, may be better for your health than you might have imagined? And, certainly better for the health of the planet.

After more than 18 months of campaigning by the Epilepsy Society, a senior director at Twitter has given MPs his word that they will put a stop to flashing images that could pose a danger to people with photosensitive epilepsy on the social media platform.

We feel passionately that human health should be higher on the climate change agenda. So as world leaders gather in Glasgow for COP26, we are taking the bold decision to turn our much-loved purple branding green.

The Epilepsy Society were delighted that our local MP, Sarah Green, chose to mention the effects of climate change on people with epilepsy in her first ever question to the Prime Minister.

During COP26, we launched EpiCC’s #TheEnvironMentalIssue, a living newspaper made from algae issued in partnership with The Herald (Scotland’s broadsheet newspaper). The issue was voted best campaign at the UN summit by PR Week UK.

Scientists at the Epilepsy Society are already looking at how climate change is affecting people with severe epilepsy. But now they are also trying to find out how a fluctuation in temperature inside the charity's residential care homes could also impact seizures.

A new study has raised hopes that people who live with long-term drug resistant epilepsy may still enjoy a period of seizure freedom in later life. And it has thrown a spotlight on the complex relationship between epilepsy and the ageing process, highlighting the need for more research.

Do you have experience of working in social care, or do you have lived experience of supporting someone with complex care needs? Maybe you have taken early retirement from care work or are thinking of a career supporting people with disabilities. If so, the Epilepsy Society would love to hear from you. 

Bristol-based innovation agency, Gravitywell, have developed technology to teach a piece of artificial intelligence (AI) how to detect and prevent the spread of flashing images on social media that could trigger seizures.

Thousands of the UK’s most vulnerable people – including those with epilepsy - will be among the first in the world to to take part in a home study looking at potentially life-saving antiviral and antibody treatments if they test positive for Covid-19.

In a landmark report, MPs and peers are urging the government to introduce a new offence – Zach’s Law – to protect people with epilepsy from malicious posts designed to cause seizures.

A big thanks to McDonalds for going the extra mile when a customer had a cluster of seizures in one of their branches. Not only did staff treat her with kindness and sensitivity, but the fast food chain also shared our ‘Calm, Cushion, Call’ messaging on their social media.

Comedian Jake Lambert is 32 and on a mission to get people talking – and laughing – about epilepsy, more specifically his own epilepsy. He uses his stand-up comedy gigs across the country to bring the house down while at the same time helping audiences to understand more about the condition. And it’s working.

The Epilepsy Society has great job prospects for anyone who would like a career supporting people with disabilities

We are aware that some people have experienced difficulties in accessing the following epilepsy medication: Vimpat 50mg and Vimpat liquid. The pharmaceutical company UCB has assured us that there are no supply issues, though there have been delivery issues in some areas resulting in local shortages.

We are aware that some people have experienced difficulties in accessing the following epilepsy medication: Epilim Chrono modified release 200mg.

What matters most to you about epilepsy research? What are the outcomes that are most important to you? If you could sit down with a researcher, what would be the top three priorities that you would like to them to focus on in their epilepsy research?

MPs who have been supportive of Zach's Law argue that there is still more to do in tightening the draft online safety laws.

The Epilepsy Society is disappointed that Zach’s Law was not included in the first reading of the Online Safety Bill in Parliament yesterday. However, we are hopeful that the new offence to protect people with epilepsy from internet trolls will be included at a later stage in the legislative process.

It could be something to do with her name, but MP Sarah Green has a propensity for changing the colour of the landscape.

All of us at the Epilepsy Society are delighted to have been shortlisted for a prestigious campaigning award.

Researchers at the Epilepsy Society fear that adults in social care with epilepsy and learning disabilities could be receiving the wrong medication or treatment due to a lack of diagnosis.

Today (Tuesday 19 April 2022), the Online Safety Bill will have its second reading in the House of Commons. This is a chance for MPs to debate this most important piece of legislation in the internet age. The Epilepsy Society is pleased to have the support of Minister Chris Philp in backing our Zach’s Law campaign to tackle internet trolls who target people with epilepsy in order to trigger seizures. 

Women with epilepsy who are taking pregabalin are warned that the medication could increase risk of physical harm for a baby during pregnancy and are advised to consult their doctor. It is important never to stop taking your medication without seeking medical advice first.

National Epilepsy Week runs from 23-29 May and this year epilepsy charities in the UK are focusing on both the important role that families, friends, colleagues and healthcare professionals play in supporting people with epilepsy, and also on how the condition can impact them.

Much to our delight - and surprise - last week saw the Epilepsy Society win two awards in just three days for our #ZachsLaw campaign.

It was a major win in parliament today for our Zach's Law campaign, when Minister Chris Philp gave his unequivocal commitment to introduce a stand-alone offence to tackle internet trolls who maliciously target people with epilepsy.

Thank you to Beyoncé and her team for responding so quickly to concerns raised about her new Break My Soul video, which contains flashing images.

Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme.

We aim to bring forward the day when epilepsy is not a hidden disability – no longer a stigma that is hidden in the shadows and misunderstood. Help shape the future of clinical provision for people with epilepsy. Join us in being part of this journey by giving your support.

Take part in our immersive 360-degree experience which takes you on the journey of a genome through our wet laboratory. Our research team will explain what happens to a patient's genome at every stage through video and interactive elements.

We are the leading charity care provider, where people love to work and live. Our wide range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes.

In these challenging times, we rely on donations to ensure vital services for our beneficiaries can continue. If you can spare a donation or pledge a monthly gift, you can help fund research breakthroughs and provide vital support for everyone affected by epilepsy.

In these challenging times, charities rely on donations to ensure vital services for our beneficiaries can continue. If you can pledge a monthly gift, you will be helping to ensure we continue to support everyone affected by epilepsy. Thank you.

Croft Cottage provides a small homely environment for seven adults with complex epilepsy, associated impairments and learning disability.

The ultimate goals of our current research are to spearhead personalised treatment and to incorporate genomic diagnosis into the NHS for people with epilepsy.

Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme.

Find out about our innovative genomics clinic and our pioneering research that is changing the landscape of epilepsy.

Meet the team at Epilepsy Society leading the way in global research. Our team are passionate about translating research findings to improve the lives of people with epilepsy.

Epilepsy Society’s Chalfont Centre is unique in bringing together intellectual capital to form a powerhouse multidisciplinary team who contribute to a wide ranging spectrum of research. It is only by working together that we will be able to translate the findings of our research into clinical medicine.

Neuroimaging enables us to look deep inside the brain to learn more about the impact of seizures on its structure and function.

The Epilepsy Society Brain and Tissue Bank is the first of its kind in the UK. It is dedicated to the study of epilepsy through brain and other tissue samples.

In this project we will undertake whole genome sequencing analysis of people with complex epilepsy. Our aim is to be able to give individuals participating in the programme an accurate diagnosis and provide the basis for developing individualised treatments.

Almost 1 in 100 people in the UK have epilepsy and they are 2-3 times more at risk of premature death and 20 times more at risk of sudden unexpected death compared to the general population. Our SUDEP project is undertaking whole genome sequencing on 100 DNA samples to try to identify genetic changes that may increase a person's susceptibility to SUDEP.

We know that the shape of the human face is influenced by genetic factors. Now our researchers are using 3D imaging, or three-dimensional stereophotogrammetry, to try to establish whether there is a link between face shape and genetic variations which can lead to epilepsy.

Optical Coherence Tomography is one of the most advanced scanning tools used to measure the thickness of the retinal fibres at the back of the eye.

Transcranial Magnetic Stimulation (TMS) is a non-invasive and painless technique, using a powerful magnetic field, similar to that used in an MRI scanner. This is used to stimulate a small region of the brain. For example, if we stimulate the brain region controlling movement, it will cause a measurable muscle twitch.

We are using whole genome sequencing to help us understand the many causes of epilepsy. This builds on many years of studying epilepsy by investigating the exome, or protein-encoding part of our genes which accounts for 10 million letters. Read about our research to understand the genetic causes of DOORS syndrome using exome sequencing.

Dr Wendy Jones discusses Epilepsy Society's innovative genomics clinic and how it is helping guide families to understand the causes of epilepsy.

Bioinformatics uses computer programming to analyse or interpret the huge amount of data a sequenced genome produces. This will help us to understand the genetic architecture of the epilepsies and accelerate precision treatment for epilepsy.

Approximately 1 in 1,000 adults with epilepsy and 1 in 4,500 children with the condition lose their lives to Sudden Unexpected Death in Epilepsy (SUDEP) every year. Congenica, the global diagnostic decision support platform provider, is collaborating with Epilepsy Society's Chalfont Centre and UCL to study the genomics of SUDEP.

Ley Sander is Professor of Neurology, Head of the Department of Clinical and Experimental Epilepsy at UCL Queen Square Institute of Neurology, Consultant Neurologist at UCLH National Hospital for Neurology and Neurosurgery and Medical Director at Epilepsy Society.

Sanjay Sisodiya is Professor of Neurology at UCL Queen Square Institute of Neurology and Honorary Consultant Neurologist at the National Hospital for Neurology and Neurosurgery and Director of Genomics at Epilepsy Society.

Dr Simona Balestrini is the Muir Maxwell Trust Research Fellow at Epilepsy Society and Honorary Clinical Associate Professor at UCL Queen Square Institute of Neurology.

Wendy Jones is Honorary Consultant Geneticist at the UCLH National Hospital for Neurology and Neurosugery and Chalfont Centre for Epilepsy. She reviews individuals and their families in the Epilepsy Genomics Clinic and carries out genetic counselling.

Dr Fergus Rugg-Gunn is a Consultant Neurologist at Epilepsy Society's Chalfont Centre and The UCLH National Hospital for Neurology and Neurosurgery.

John Duncan is Professor of Neurology at UCL Queen Square Institute of Neurology, Consultant Neurologist at UCLH and Principal Investigator in Neuroimaging at Epilepsy Society’s Chalfont Centre.

Matthias Koepp is Professor of Neurology at UCL Queen Square Institute of Neurology, Consultant Neurologist at the UCLH National Hospital for Neurology and Neurosurgery, and Clinical Lead of the MRI-Unit at the Epilepsy Society.  

In her current role as a Bioinformatician Helena is applying computational and statistical methods to analyse complex genomics data in order to understand the genetic architecture of different types of epilepsies.

Find out about our innovative genomics clinic and our pioneering research that is changing the landscape of epilepsy.

Find out about our innovative Epilepsy Navigator software that enables even more sophisticated and accurate brain surgery for epilepsy.

Read about current research areas and projects running under our world leading neuroimaging programme.

In the last 20 years we have been using functional MRI (fMRI) at Epilepsy Society's Chalfont Centre to map where different functions such as language and vision occur in the brain.

In order for a person to be suitable for surgery, it is necessary to confirm that seizures are arising from one part of the brain and that it is safe to remove this part. This requires many tests including MRI brain scans.

Epilepsy Navigator is an interactive 3D-neuronavigation system that enables the best operative approach for inserting electrodes into the brain in order to pinpoint the areas where seizures arise from. These plans are now being used to direct a robotic system for placing the electrodes through the skull and into the brain.

Find out about our innovative genomics clinic and our pioneering research that is changing the landscape of epilepsy.

Our supported living service is available to adults with epilepsy who may also have other associated or additional complications. The service provides people with the opportunity to live with greater autonomy and independence in the community.

Greene House is a care home for up to 14 adults. The staff provide personal and social care in person centered way.

Micholls House is all about individualised care and empowerment. Residents are encouraged to be involved in all decisions about their lives - what they choose to eat each day, what they wear, what activities they take part in, what trips they go on and whether they choose to use our on-site health services or their own.

Morton House is a care home for up to 14 adults. The staff provide personal and social care based on individual choices and preferences.

At Russell House we are dedicated to empowering residents and enabling them to do as much as they can, and make as many decisions for themselves, as possible.

Our specialist nursing care for adults with epilepsy is provided in Queen Elizabeth House at our Chalfont Centre in Buckinghamshire. In addition to their epilepsy, residents often have associated and additional complications, including physical and learning disabilities, brain injury and autism.

Our care service team provides a person-centred approach, and the residents are at the centre of everything we do. One aspect of this is that we involve residents in the development and delivery of staff training.

Our aim is to make the transition into a new home as smooth as possible for every individual.

Our approach is to provide a service and environment that supports all those with epilepsy to live a better and more fulfilling life.

We are committed to creating an environment that is enabling, empowering, diverse and inclusive. People who use its services can expect volunteers and employees to respect their human rights.

We offer care and support in residential and nursing settings. Each home provides a relaxed and friendly atmosphere, and residents are empowered to live as full a life as possible within a supportive environment.

Our aim is to make the transition into a new home as smooth as possible for every individual.

Epilepsy is not just one condition, but a group of many different 'epilepsies' with one thing in common: a tendency to have seizures that start in the brain.

Did you know that the Greek philosopher Hippocrates (460-377 BC) was the first person to think that epilepsy starts in the brain? Find out more interesting facts and debunked myths around epilepsy and seizures.

People can feel differently about their diagnosis; some people come to terms with it quickly, some take longer, and some feel that epilepsy will always be an ongoing issue for them.

There are a number of common misconceptions surrounding epilepsy and epilepsy terminology.

Information about seizures and treatment for people with epilepsy and learning disability.

Non-epileptic seizures (NES) or dissociative seizures may look similar to epileptic seizures but they are not caused by abnormal electrical activity in the brain.This guide will help you understand what non-epileptic seizures are, what causes them, how they are diagnosed and how they can be treated.

An 'aura' is the term that some people use to describe the warning they feel before they have a tonic clonic seizure. An epilepsy 'aura' is in fact a focal aware seizure.

If there is a possibility that you have epilepsy, NICE recommends that you are referred to a specialist, (a doctor who is trained in diagnosing and treating epilepsy) within two weeks. Your diagnosis is based on finding out what happened to you before, during and after your seizures.

If you have a seizure you may not remember what has happened. It can be helpful to have a description of what happened from someone who saw your seizure, to pass on to your GP or specialist.

If you have just been diagnosed with epilepsy, you may see different people to help you manage your epilepsy. This might include a neurologist, an epilepsy specialist nurse and your GP.

Any diagnosis can be a shock, even if you are expecting it. You may feel numb, angry, confused or frightened. Or you may feel relieved – what’s been happening to you has a name and a treatment. Everyone has their own way of reacting to a new situation.

Blood tests, an Electroencephalogram (EEG) and scans are used to gather information for a diagnosis. Tests on their own cannot confirm or rule out epilepsy.

An MRI scan will not say for certain whether the person has epilepsy or not. But alongside other information, it might help the specialist to decide what the likely cause of the seizures is.

Get a closer look at EEG including further information on brain waves, electrical signals and the 10-20 system.

Anti-seizure medication (ASM), previously known as anti-epileptic drugs or AEDs, is the main type of treatment for most people with epilepsy, that aims to stop seizures from happening.

If you have just been diagnosed with epilepsy, you may have questions about medication and treatment. 

Get a closer look at MRI including further information on atoms, protons and spectroscopy.

The ketogenic diet is one treatment option for children or adults with epilepsy whose seizures are not controlled with AEDs. The diet may help to reduce the number or severity of seizures and may have other positive effects.

Vagus nerve stimulation therapy is a treatment for epilepsy that involves a stimulator (or 'pulse generator') which is connected, inside the body, to the left vagus nerve in the neck. The stimulator sends regular, mild electrical stimulations through this nerve to help calm down the irregular electrical brain activity that leads to seizures.

Brain surgery or neurosurgery is one way of treating epilepsy. Certain criteria have to be met and tests have to be done to assess suitability.

With talk in the media about the use of cannabis products to treat epilepsy, generating interest and confusion, we outline the different forms of cannabis, their legality and their safety.

Pharmacists play a key role in helping to manage healthcare for people in the community. They are qualified to help you to use medicines safely, to help your medicines work as effectively as possible for you and to provide other services to help you stay well.

Medical appointments can be very important, but time is often limited, so it is useful to prepare beforehand. Here are some suggestions to help make the most of your appointment or review.

The aim of treatment is to stop all of your seizures with the lowest dose of the fewest number of ASMs and with the least side effects.

For most people with epilepsy, the treatment for their seizures includes anti-seizure medication (ASM), previously known as anti-epileptic drugs or AEDs. But what do these drugs do?

List of anti-seizure medication (ASM), previously known as anti-epileptic drugs or AEDs, with details including dosage and possible side-effects.

As with all medications AEDs can cause side effects and possible side effects vary from one AED to another.

Getting the same version of anti-epileptic drugs (AEDs) with each prescription may contribute to how well the drug works for that person.

Our 'a closer look' series of information looks at some subjects in greater technical detail. Here we try to answer some of the more common questions about anti-seizure medication (ASMs).

In August 2018, the Government asked pharmaceutical companies to ensure they have a minimum six week stockpile of prescription-only and pharmacy-only medicines in case of potential delays at UK borders after Brexit on 29 March 2019.

Managing your treatment is an important part of managing your epilepsy, and seeing whether your medication is working. This might include having a care plan, including a treatment plan.

Sodium valproate is an epilepsy drug prescribed for all seizure types including absence, myoclonus and tonic clonic seizures. New regulations have been introduced by the Medicines and Healthcare products Regulatory Agency (MHRA) around the way in which the drug, sodium valproate is prescribed to women and girls of childbearing age. 

Information and training for people who are responsible for giving emergency medication to people with epilepsy.

The decision whether to start taking anti-epileptic drugs (AEDs) can be difficult, and there is a lot to think about. Here we look at the benefits and risks of taking, or not taking, AEDs.

If someone has not had a seizure for two or more years then they may think about withdrawing (coming off) their ASM.

If you have difficulties with taking your medication the following strategies and tools might be helpful.

How doctors monitor epilepsy including therapeutic drug monitoring which checks the effectiveness of drugs taken by people with epilepsy.

Our specialist residential care for adults with epilepsy is provided at our Chalfont Centre in Buckinghamshire. We provide residential care for approximately 90 adults, who in addition to their epilepsy, often have associated and additional complications, including physical and learning disabilities, brain injury and autism.

People can react differently to a diagnosis. You might feel lots of different emotions. It may not be possible to think and feel positively, or you may feel fine one minute, and upset or angry the next. It may be helpful to know that this is a common way to feel.

Research has shown that sodium valproate can cause serious problems in a developing baby. Of babies whose mothers take sodium valproate during pregnancy, up to 1 in 10 (10%) are at risk of having a birth defect, and up to 4 in 10 children (up to 40%) have problems with development and learning as they grow.

The latest news around the Anti-Epileptic Drug Sodium valproate.

Most women with epilepsy will have a normal pregnancy and labour and over a 9 in 10 (90%) chance of having a healthy baby. Women with epilepsy have a slightly higher chance of having a baby with a birth defect due to genetic conditions, injury during seizures and anti-epileptic drugs (AEDs). Talk to your neurologist about how you can reduce the risk to your unborn baby.

Information about the risk of seizures and pain relief available for women with epilepsy during childbirth.

Information for women with epilepsy about breastfeeding including concerns about passing medication to the baby.

If your seizures (or your partner’s) are controlled, then epilepsy may not affect how you look after your child. However, parents who have seizures may find taking extra safety measures helpful. This depends on the type of seizures and the activity involved.

Most women with epilepsy do not have any change in their seizure frequency during pregnancy. However you might find that your seizures are better controlled during pregnancy, or that you have more seizures than is usual for you.

There are many different types of epileptic seizure. Any of us could potentially have a single epileptic seizure at some point in our lives. This is not the same as having epilepsy, which is a tendency to have seizures that start in the brain. 

The brain is a highly complex organ and the centre of the nervous system. Here is more detail about the different areas of the brain.

Neurones are nerve cells carrying information. This page looks at neurones in greater technical detail - what neurones do, what they look like, and how they pass messages.

In March 2017 the International League Against Epilepsy (ILAE), a group of the world's leading epilepsy professionals, introduced a new method to group seizures. This gives doctors a more accurate way to describe a person's seizures, and helps them to prescribe the most appropriate treatments.

Absence seizures are more common in children than adults and can happen very frequently. During an absence a person becomes unconscious for a short time. They may look blank and stare, or their eyelids might flutter. They will not respond to what is happening around them. If they are walking they may carry on walking but will not be aware of what they are doing.

In an atonic seizure (or 'drop attack') the person’s muscles suddenly relax and they become floppy. If they are standing they often fall, usually forwards, and may injure the front of their head or face. Like tonic seizures, atonic seizures tend to be brief and happen without warning. With both tonic and atonic seizures people usually recover quickly, apart from possible injuries.

In focal aware seizures (FAS), previously called simple partial seizures, the person is conscious (aware and alert) and will usually know that something is happening and will remember the seizure afterwards.

Focal impaired awareness seizures (FIAS) affect a bigger part of one hemisphere (side) of the brain than focal aware seizures. This seizure was previously called complex partial seizures.

Myoclonic means ‘muscle jerk’. Muscle jerks are not always due to epilepsy (for example, some people have them as they fall asleep). Myoclonic seizures are brief but can happen in clusters (many happening close together in time) and often happen shortly after waking.

These are the seizures that most people think of as epilepsy. the person becomes unconscious their body goes stiff and if they are standing up they usually fall backwards. they jerk and shake as their muscles relax and tighten rhythmically.

Your brain controls the way you function. Inside your brain, millions of nerve cells (neurones) pass messages via electrical signals to each other. During a seizure these electrical signals are disrupted and this affects how you feel or what you do while the seizure is happening.

Keeping a seizure diary can be useful to help you record when your seizures happen and to see whether there are any specific triggers for your seizures. Sometimes, known triggers can be avoided to help reduce the number of seizures.

Diagnosing epilepsy is not simple. Doctors gather lots of different information to assess the causes of seizures. If you have had two or more seizures that started in the brain you may be diagnosed with epilepsy.

Our document, Care and treatment: your rights and choices explains your rights and the services that you can expect as someone with epilepsy.

Care and treatment: your rights and choices says: ‘After a suspected seizure, you should be seen by an epilepsy specialist within two weeks.’ This is recommended (and not a legal right) so that suspected epilepsy can be diagnosed and appropriate management can be considered without delay.

Care and treatment: your rights and choices says: ‘If your seizures are not controlled, or your diagnosis is not clear, you should be referred to tertiary care.’ This is so that you can be seen by someone with expertise in epilepsy, and have access to investigations to help you. This is a recommendation, not a legal right.

Care and treatment: your rights and choices says: ‘You have a right to appropriate treatment options, and should have a consistent supply of medication.’ Your specialist should work out what is the best treatment for you, and you should have access to the drugs that they recommend.

Care and treatment: your rights and choices says: ‘You are entitled to NHS dental care and free prescriptions', for your anti-epileptic drugs and any other prescriptions you have.

Care and treatment: your rights and choices says: ‘You have a right to be involved in your healthcare and you should have enough information, and appropriate support, so that you can make informed decisions about your health and be an active participant in all decisions about your epilepsy treatment and management.’

Care and treatment: your rights and choices says: ‘You should have a comprehensive care plan agreed with your healthcare professionals, which should include both medical and lifestyle issues. You should also have an annual review of your epilepsy.’

Care and treatment: your rights and choices says: ‘You have a right to choose who provides your care.’ You can choose which hospital to go to, and can ask for a second opinion about your health condition or treatment.

Care and treatment: your rights and choices says: ‘You have a right to access your own health records.’ To help you understand more about your health, you can ask to see your health records.

Care and treatment: your rights and choices says: "You are entitled to ask for a health and social care assessment". Unpaid carers are also entitled to their own assessment and people with epilepsy, and their carers, may be entitled to welfare benefits.

Care and treatment: your rights and choices says: ‘You have a right to be treated with dignity and respect and to not be discriminated against.’ People with epilepsy are protected under the Equality Act 2010, which makes discrimination unlawful. This includes discrimination on the basis of disability.

Care and treatment: your rights and choices says: ‘You have a right to complain about services or treatment.’ There are various procedures for doing this, and for taking your complaint further if it is not resolved.

Care and treatment: your rights and choices says: ‘You have responsibilities as well as rights.’ Along with your rights to services from the NHS, you have some responsibilities to the NHS too.

This website privacy policy aims to help you to understand what information Epilepsy Society might collect and process about you. Epilepsy Society is committed to protecting and respecting your privacy.

Sources used to develop Care and treatment: your rights and choices.

A lay summary of research recently published in open access journal by staff based at the Chalfont Centre for Epilepsy.

In the last 10 years we have been using functional MRI (fMRI) at Epilepsy Society's Chalfont Centre to map where different functions such as language and vision occur in the brain. For example our research has enabled us to see exactly which part of the brain we use if we want to think of words, name objects or describe a picture. This ability to visualise the communication and thought networks in the brain is enabling us to protect these during surgery and assess how some medications may affect our speech and cognitive abilities.

Donating your brain and tissue for research will help make a huge difference to our understanding and treatment of epilepsy in the future. By donating your brain and tissue you could help change the lives of people with epilepsy.

Triggers are situations that can bring on a seizure in some people with epilepsy.

Having a good night's sleep helps our brains to recover from the day's events, so that we can function well the next day. For some people with epilepsy a lack of sleep can make seizures more likely to happen, for others having seizures at night can make them feel tired during the day.

Whether to drink alcohol or take recreational drugs is a personal choice, but it is worth knowing the possible effects they could have on your epilepsy. Alcohol or recreational drugs can cause epilepsy in some people.

Music is part of our everyday life and culture. For most people, listening to or playing music is a pleasurable experience. But for people with epilepsy, the relationship with music can be far more complex.

Around 1 in 100 people has epilepsy and of these people, around 3% have photosensitive epilepsy. This is when seizures are triggered by certain rates of flashing lights or contrasting light and dark patterns.

For most people seeing a film at the cinema is unlikely to trigger seizures. However, many films these days are released in 3D. Also Virtual Reality (VR) is a technology that is being used more and more in everyday life. So what are the risks for people with photosensitive epilepsy?

If you have epilepsy you may be eligible to apply for benefits. This depends on what your epilepsy is like and how it affects you.

If you are applying for a benefit, you will need to complete a form about how your condition affects you. Whether or not you are eligible for the benefit, and the amount of money you could be awarded, will depend partly on the answers you give on these forms.

Whether someone with epilepsy can claim benefits will depend on their situation. Some benefits such as Personal Independence Payment (PIP) are for people with a long-term disability or health condition, who need help or support with daily living, or with mobility, or both.

Universal Credit is now available to all new claimants (unless they get, or are entitled to get, Severe Disability Premium). It is a benefit for working-age people (usually 16 to 64 years) who are on a low income, or who are looking for work and will replace some existing benefits, listed below.

Employment and Support Allowance (ESA) is a UK benefit for people of working age, who cannot work or who have 'limited capability to work' due to illness or disability, and who are not entitled to Income Support, Jobseekers Allowance or getting Statutory Sick Pay, or Statutory Maternity Pay.

PIP is a UK benefit for people over the age of 16, to help with any additional costs due to having a long-term disability or health condition.

Personal Independence Payment (PIP) is a UK benefit for people over the age of 16, to help with any additional costs due to having a long-term disability or health condition. This information is designed to help you with the first stage of applying for PIP - making a claim.

An important part of assessing your ability to carry out each activity is assessing whether you are able to do the activity ‘reliably’. Here, ‘reliably’ means that all of the following points apply.

It is important that you fill in your form promptly and try not to put it off, even if it looks difficult. There is a short time frame for filling in and returning your form (usually one month), and this should be explained in the information you get from the DWP, which will include the deadline for returning the form.

Whether or not you qualify for PIP depends on how your condition affects you in two ways: your 'daily living' and your 'mobility' (how you physically move).

Information about the daily living and mobility activities that form part of your PIP assessment criteria.

This activity is about whether you can prepare and cook a simple, hot, one-course meal from fresh ingredients (not ready meals). It is not about how good you are as a cook, but about whether your medical condition(s) affects your ability to prepare a simple, hot meal.

This activity is about physically feeding yourself, eating and drinking, and whether you are able to do this unaided, or with help. It does not include preparing food (covered in activity 1). Nutrition means food and drink.

This activity is about taking medication, or managing any treatment, at home. It is also about your ability to notice any changes in your health, and know what to do about it.

This activity is about your ability to keep your body clean, including washing your whole body and getting in and out of a non-adapted bath or shower.

This activity is about your ability to dress and undress, including choosing, and putting on appropriate and non-adapted clothing that is suitable for the situation, including socks and shoes. This may include dealing with fastenings such as zips or buttons.

This activity is about your ability to get on and off the toilet, to clean afterwards and to manage emptying your bladder and/or bowel, including the use of collecting devices. This activity does not include the ability to manage clothing, for example fastening and unfastening zips or buttons, as this is covered in activity 6.

This activity is about speaking and being understood, and about listening and understanding. It means speaking and listening in your native language, which may not be English. It includes sign language and text relay, but not Braille.

This activity is about understanding written or printed information, including signs and symbols, in your native language (which may not be English).

This activity is about how you get on with other people (people you know and people you don't know). It includes behaving appropriately with other people and understanding how they behave towards you, including whether severe anxiety or stress stops you from doing this. It includes understanding body language and establishing relationships.

This activity is about your ability to make everyday decisions about spending and managing your money.

This activity is about planning (working out) and following a journey, including using public transport, and whether severe anxiety or distress stops you from being able to go out. It is not about your physical mobility (covered in the mobility activity 'PIP - moving around').

This activity is about being able to physically move around, focusing on being able to stand up and walk unaided, without severe discomfort such as breathlessness, pain or fatigue.

The Chalfont Centre and our Gowers unit lead the way in the most advanced techniques for the diagnosis and treatment of epilepsy.

Contact details for the inpatients and outpatients department, travel information and how to find us.

Our team of consultant neurophysiologists and skilled technicians carry out detailed tests to help with the diagnosis and classification of seizures.

Therapeutic drug monitoring (TDM) is an area of clinical chemistry that specialises in measuring medication levels (concentrations) in patients, usually through blood samples but also through saliva samples.

You may be asked to come to the Sir William Gowers Centre as a day case admission. You will not be required to stay overnight so will not need to bring an overnight bag with you. However, you should bring your medication and continue to take it as normal.

NHS referrals can be made by consultant letter or through the GP e-referral system.

While at the Sir William Gowers Centre we will do everything we can to make you comfortable. The following information will help you to prepare for your visit. If you have any questions about your stay, please contact us on 01494 601 480.

The following information will help you to prepare for your outpatient appointment at the Sir William Gowers Centre. If you have any questions about your appointment, please contact us on 01494 601435.

In patients in whom toxic symptoms are suspected, serum AED concentrations can aid in confirming a diagnosis of AED toxicity, though clinicians should be aware that relatively low concentrations do not necessarily exclude such a diagnosis.

The matrix of choice is serum or plasma, and although they can be used inter-changeably it is preferable to use one or the other. In most clinical settings the measurement of total serum concentrations will suffice and indeed most routine methods for measuring AEDs in sera do not discriminate between the component of drug that is free (unbound) and that that is bound to serum proteins.

The assay service is routinely available Monday to Friday, 9am-5pm. For urgent assay requests, please contact the unit in advance. The unit will report on non urgent assay requests within 3 working days of receiving the sample in the laboratory, excluding weekends or bank holidays.

Our TDM unit provides a specialist AED TDM service for in-patients and out-patients attending the National Hospital for Neurology and Neurosurgery (Queen Square), University College Hospitals NHS Trust and Epilepsy Society. You can find a selection of contacts for the TDM unit here.

Information regarding visitors, weekend leave and practicalities.

A selection of first aid information for seizures including how to put someone into the recovery position and what to do if someone is in 'status'. 

How you can best help someone during a seizure depends on what type of seizure they have and how it affects them. On this page you'll find information on what the different types of seizures are and how to treat them.

Our #seizuresavvy campaign focuses on tonic clonic seizures as these are the type of seizure that are most easily recognised. The charity’s new campaign gives people three simple but key instructions to remember in an emergency: “Calm, Cushion, Call.”

Our step-by-step guide to the recovery position shows you how to help someone recover after a tonic clonic seizure. These steps should be followed once the shaking has stopped.

Although most people do not hurt themselves during a seizure, sometimes seizures can cause injuries.

Although seizures can be frightening to see, they are not usually a medical emergency. Usually, once the seizure stops, the person recovers and their breathing goes back to normal.

If you need to make a call to the emergency services (999 in the UK) on an Android or iPhone device, there are ways to automatically send your GPS location to the emergency services at the same time.

You may be able to help someone with epilepsy if you know about their seizures. Here are some questions to help you.

A person's seizures usually last the same length of time each time they happen and stop by themselves. However, sometimes seizures do not stop or one seizure follows another without the person recovering in between. If this goes on for 5 minutes or more it is called status epilepticus or ‘status’.

Everyone is individual and people react in different ways to their seizures and in how they recover. Some people cannot remember what happened to them during a seizure, some like to be talked to during their seizures and as they recover, and some need to sleep afterwards.

Our campaigns team lobby government and decision-makers on the issues that matter to people with epilepsy. From safer medicines for pregnant women to the dangers of online harm, and from medicines supply to public transport access, we raise awareness of the daily challenges facing people with epilepsy.

We have worked alongside other charities to raise awareness of the risks associated with pregnant women taking sodium valproate and have campaigned in support of the recommendations made in First Do No Harm.

Epilepsy Society called on the Health Secretary to commission an urgent review of the medicines supply chain.

We launched our 'Me and My Shadow' scheme on International Women's Day. Our Me and My Shadow scheme provides opportunities for women with epilepsy to shadow women in a range of different careers for a day. It aims to build confidence and ambition in women with epilepsy and encourages them to think big.

Epilepsy featured as part of Transport For London's poster campaign to raise awareness of the priority card scheme encouraging travellers to give up their seat for those with invisible disabilities.

Our 'Everyone Knows Someone' campaign was a yearly joint campaign between Young Epilepsy and Epilepsy Society in association with River Island, to raise awareness of epilepsy during national epilepsy week. Meet the faces of our 'Everyone Knows Someone' campaign below.

Having epilepsy can have a huge impact on a person's wellbeing including their mood, sleep and relationships. 

Everyone feels anxious at times. When you are frightened or feel threatened, your heart beats faster, your muscles tense and your body prepares you to ‘fight’ the threat, or to run away from it – ‘flight’.

We all feel low and depressed sometimes, without it being a medical problem. Depression becomes a problem when the unhappy feelings don’t go away and it affects our daily life: eating, sleeping or being able to get out of bed.

For some people, their epilepsy and mood problems are not connected, they just happen to have both conditions. However, potential links are to do with how epilepsy affects your life as well as with your brain, your genes and your family history.

The following information should tell you everything you need to know about having an EEG at our EEG Telemetry Unit.

Memory can be one of the key issues that affects people with epilepsy. This can be for many reasons, including the type of seizures they have, the effects of medication, the effects of epilepsy on concentration or mood, lack of sleep, age, or the effects of epilepsy surgery.

A balanced diet from different food groups helps the body and brain to function, helping us to stay healthy. This may help reduce the risk of seizures for some people with epilepsy.

How exercise can help your overall health and wellbeing, and how this may also help your epilepsy.

How complementary therapies can help to promote your wellbeing and underlying health as well as reduce your stress levels.

Epilepsy and seizures can affect people in different ways. Support can mean finding understanding, ways to cope, or to feel more in control about living with epilepsy. Here are various ways that you can find support if you need it.

Many people with epilepsy have fulfilling relationships with a partner. However, epilepsy may affect relationships for some people, and problems with sex are common for both men and women with epilepsy. There are various ways to manage these problems and find support.

It is not unusual for people who have epilepsy to have memory problems. Problems may happen for any or all of the following reasons.

Anyone can have difficulty remembering information. Keeping your brain alert and active is a good thing but, on its own, may not necessarily improve memory.

Here's a selection of apps which you may find useful for helping to manage your epilepsy and other related issues.

Information for people with epilepsy on complementary therapies, diet, exercise and support networks.

Some people with epilepsy find it helpful to consider safety aids or equipment that might help them with day-to-day life. For example, an alarm, or monitor, that can alert family or friends when someone has a seizure.

Our templates make suggestions about what the risks may be because of someone’s seizures, risks associated with living conditions (around the home), and risks associated with outdoor activities.

If your seizures are controlled by treatment, your safety may not be affected. But if you continue to have seizures, safety may be an issue. Some safety issues may not be relevant to you or you may have your own ideas about what would make situations safer for you. Here are some suggestions to help you think about your safety at home.

Some people with epilepsy choose to wear or carry with them a medical identity (ID) card or medical jewellery that says they have epilepsy.

Risks due to epilepsy depend on what someone's epilepsy is like. Getting good seizure control and staying safe are ways to help reduce risks.

Throughout our lives, memories are being made, stored and found by our brain. Links made between our brain cells help us to remember the thoughts, skills, experiences and knowledge that make each of us unique. Memory can be one of the key issues that affects people with epilepsy.

The following information should tell you everything you need to know about having an EEG at our EEG Telemetry Unit.

This area of the site is aimed at people with a professional interest in epilepsy including GPs, Nurses, pharmacists, commissioners and doctors.

Guide for pharmacists working in registered pharmacy premises in the UK, co-produced by Epilepsy Society and Medway School of Pharmacy. Includes information about treatment, seizure types, points to cover with patients taking anti-seizure medication (ASM).

The following information is designed to help GPs in delivering healthcare to people with epilepsy.

Our courses are available to a wide range of people looking to develop their understanding of epilepsy for professional or personal reasons. Delegates include carers, school escorts, post-graduate students as well as commercial organisations, GP surgeries and drug company representatives. 

Here we have compiled a list of top resources, particularly relevant to healthcare professionals, which you may find useful when delivering care or treatment to adults with epilepsy.

You are entitled to free prescriptions for your epilepsy medications. You may be able to get financial help towards the cost of travel to medical appointments and to work.

Many of these books are available to buy from Amazon. To buy from Amazon simply click on the links below. By using these links, you will automatically donate about 5% of the price of the book to Epilepsy Society, at no cost to you.

Epilepsy Society's confidential helpline is available for anyone affected by epilepsy. We welcome calls from people with epilepsy, their families and friends, as well as professionals such as doctors, nurses, care workers, teachers and employers.

Please find a selection of DVDs for people affected by epilepsy.

Many people who contact us say that having someone to talk to, who has epilepsy or knows about epilepsy, can be really helpful and reassuring. It can be an important part of coming to terms with a diagnosis of epilepsy.

A selection of reading around epilepsy for professionals including doctors, GPs and researchers.

Terms and conditions for Epilepsy Society training courses. These terms and conditions apply to those who purchase Epilepsy Society's training services.

6-hour course giving delegates an understanding of epilepsy and how to administer emergency medication.

Epilepsy Society is the UK’s leading provider of epilepsy services.  Through our cutting edge research, awareness campaigns, information resources and expert care, we work for everyone affected by epilepsy in the UK.

Taking care of your overall wellbeing is a vital part of living with epilepsy. For some people, having information or support can help.

Having seizures, or being told “you have epilepsy”, can affect people in different ways. This includes driving, sleep, work and travel.

If you drive, one immediate effect of having a seizure is that you have to stop driving. This is true for all types of seizures, and whether you have a diagnosis of epilepsy or not. For many people, this can have a big impact on their life and it may be very difficult or upsetting.

Having epilepsy does not necessarily stop someone from doing the job they want, but there are some issues which can affect them at work. Whether someone’s epilepsy affects their work depends on whether they have seizures, what their seizures are like and how often these happen.

Epilepsy is a very individual condition: some people will have it all their life, but for others they might have it just for a period of their life and their epilepsy might 'go away'. So for some, epilepsy is a long-term condition.

To live full and active lives, and look after our physical and emotional wellbeing, we all need time to rest, relax and exercise. How we spend our leisure time is important and individual to us all, whether or not we have epilepsy.

Some issues around epilepsy and its treatment are specific to women and do not apply in the same way to men. These include links between epilepsy and hormones, puberty, contraception, pregnancy and the menopause.

Information for young people about epilepsy including how it may affect your life, education, relationships, driving or worklife. 

If you're considering going to university or if you’ve definitely decided that’s what you want to do, you’ll need to think about what this will mean for you in practical terms and about what support you might need, including financial support. Being well prepared will help you to make the most of your time at university.

There are many possible causes for developing epilepsy in later life. An important part of investigating epilepsy involves checking for other conditions that may look like epileptic seizures. 

This guide is for people who have epilepsy and covers Group 1 (cars and motorbikes) and Group 2 (buses, coaches and lorries) licences.

If you stop driving due to a seizure, you need to tell your insurance company as part of your insurance terms and conditions. If you don't tell them, this could invalidate your insurance and may affect your insurance in the future.

When you can drive depends on the type of seizures you have now, the type of seizures you have had previously, and what type of licence you have.

The Health and Safety at Work Act 1974 says that employers are responsible for making sure that all their employees are safe at work and are protected from possible dangers to their health.

The Equality Act 2010 came into effect in October 2010. It replaced nine previous laws that aimed to protect people against discrimination, including the Disability Discrimination Act 1995 (DDA).

You can look for a job through your local Jobcentre Plus office, personal contacts, newspapers and websites adverts or employment agencies.

Jobcentre Plus offices have Disability Employment Advisers (DEAs) who provide support to people with disabilities. They may be able to help with assessments, referral to schemes for people with disabilities (such as Work Choice), job matching and information on employers who are positive about employing people with disabilities.

Employers cannot legally refuse to give you a job just because you have epilepsy. However, they need to consider your epilepsy, and what the job involves, to ensure your safety and that of other employees.

Some people worry that telling an employer about their epilepsy might affect their chance of getting a job or being treated fairly at work. Although discrimination can happen, the Equality Act 2010 aims to protect you from discrimination, and help your employer to treat you fairly and support you at work. Having the right information about your epilepsy can help employers to do this.

When employing someone with epilepsy, it is important to consider their individual situation, and base any decisions on fact. This means looking at their epilepsy and the effect it might have on their work. Talking to them about what their epilepsy is really like, and how it might affect their work, is more helpful than making assumptions about how it affects them.

How to play sports and do other outdoor physical leisure activities with epilepsy.

Many water sports can be made safer for people with epilepsy, by taking the right safety measures. This means considering what risk the activity involves as well as how your epilepsy affects you.

Details of travel support schemes for people with epilepsy across the UK.

Having epilepsy should not usually prevent people from travelling. Planning ahead can help you stay well and make the most of your trip. Here are some ideas to consider if you are planning to travel.

An introduction to epilepsy and treatment for young people.

It's not unusual for people to worry about their sex life, whether they have epilepsy or not. Getting close to someone else can be great but it can also leave you feeling vulnerable.

Going out and having fun is important to us all – so does epilepsy have to get in the way? Epilepsy is a very individual condition; how it affects you can be quite different from how it affects someone else.

If you are at school, college or university and you have epilepsy, a law called the Equality Act 2010 aims to make sure you are treated fairly by everyone involved in your education. This includes lessons, trips out, practical subjects and exams.

Getting around and being independent is an important part of growing up. Find out about epilepsy and driving, transport and travelling.

Answering young people’s questions about work, employment and epilepsy.

Having epilepsy does not usually prevent people from being able to travel by air. However, some people’s seizures are triggered by being very tired (which could happen because of long journeys or ‘jet lag’).

So, you’ve decided you’re going to university, and selected your course. What next? Planning ahead for the practical things will help to make going to university as straightforward as possible.

Thinking about applying to university? Information to help you decide whether university is a practical option and guidance about the support that universities offer.

There are lots of things you could think about doing to reduce any impact epilepsy may have on your learning and university life. You might have lots of ideas of your own about what is best for you or it may be worth speaking to your university's disability advisor to see what help they can offer.

University can be an exciting time offering many opportunities both socially and academically and it is a time when you can build your independence. Whatever your hopes and expectations, making epilepsy just a part of your life may help you to get the most out of your experience at university.

Let’s be honest, you probably didn’t plan on your university suitcase having ‘epilepsy’ in it. Having epilepsy is more than just having seizures. It can affect every part of your life and every aspect of you: physical, mental and emotional.

Changes in hormone levels means that epilepsy treatment may need to change through a woman’s life. In this section, when we refer to women, this also includes girls of childbearing age.

Some methods of contraception may be less effective in preventing pregnancy for women taking certain anti-epileptic drugs (AEDs). This is because some AEDs (enzyme-inducing AEDs) affect how well methods of contraception work. Non-enzyme-inducing AEDs are unlikely to affect contraception.

Taking hormone replacement therapy (HRT) may increase the risk of seizures for some women with epilepsy.

Epilepsy and taking anti-epileptic drugs may contribute to the risk of developing osteoporosis for some people.

We help every resident enjoy life to the full. We recognise that everyone is different and we tailor activities to meet each individual’s needs and interests.

We offer a wide range of activities for residents both on and off site and encourage everyone to take part in community activities and outings.

This allows service users to act out real or imaginary scenarios, using the body to express feelings and emotions through silhouette and shadow imagery.

We have a team of clinical specialist therapists, all experienced in neurodisability and learning disability with specialist knowledge of epilepsy and its impact.

Art therapy allows people to explore their emotions and feelings through the process of creating, painting or drawing. This service is run by a qualified art therapist who offers individual and group sessions and forms secure relationships with the participants.

Our art therapy courses are run by a qualified art therapist who offers individual and group sessions and forms secure relationships with the participants.

We give users the chance to use conventional art materials to express their own personal creativity. This includes using a self-drying clay in many sessions for sculpting and relief work.

Art Therapy can provide a dynamic way to make sense of what is personally felt and perceived about controllability of the illness and about the adaption process.

In this section you'll find information on our impact over this year and be able to download the most recent copy of our annual report and accounts. 

Information for parents of children with epilepsy or a childhood epilepsy syndrome. 

Information about the diagnosis and treatment of childhood epilepsy and how epilepsy may affect a child’s life.

How childhood epilepsy syndromes are diagnosed, details of some specific syndromes and sources of further support.

A guide for parents on managing seizures at school and special educational needs or disabilities (SEND).

Sources of help and support for your teenage child with epilepsy.

Information to help teachers who have a child with epilepsy in their class.

If you look after someone with epilepsy, you may be their 'carer'.

Some issues around epilepsy and its treatment are specific to women and do not apply in the same way to men. These include links between epilepsy and hormones, puberty, contraception, pregnancy and the menopause.

If you are a carer of someone with epilepsy, we offer help and support for you.

The Department of Health's Carers Strategy sets out the coalition government's vision for supporting carers.

Guide to organisations offering support to carers.

By supporting our cause you can help us make a difference to the lives of 600,000 people living with epilepsy in the UK.

Support our cause in your own way and help us make a difference to the lives of almost half a million people living with epilepsy in the UK.

Our fundraising groups raise vital funds for people living with epilepsy. By setting up your own group you will be given the opportunity to fundraise in aid of Epilepsy Society.

Once you’ve completed your fundraising event or activity, the next step is donate the funds you have raised so that they can start to change lives.

Since there is no set way to fundraise, you can fundraise in a way that inspires you! Whether you choose to fundraise at home, in your local community or at your school or workplace – we’ll provide all the support you need.

Fundraise from your home and support our work, by joining us and thousands of others in taking on the 2.6 Challenge. Every pound that you donate and raise will ensure that our committed staff team can continue to offer vital support to people affected by epilepsy.

We know that the workplace can be a real force for good. Charity partnerships can help motivate staff and give you something special to tell your customers and shareholders. We can help your employees get involved in our work. 

Payroll giving is one of the best ways to donate to us. It gives us a reliable source of income to help us realise our vision of full life for everyone affected by epilepsy.

Among the different ways in which people can support Epilepsy Society, a very small number may wish to give a gift of land or buildings. Although this type of gift is rare, it can be very significant in value.

Did you know you can donate shares and investments to Epilepsy Society? By giving shares you can help us support the nearly half a million people with epilepsy in the UK and possibly earn yourself a double tax benefit at the same time.

Shop or click online to support our work. These donation methods won’t cost you a penny!

The 26th March is Purple day, a time to get people talking about epilepsy, raise awareness of the condition and raise vital funds.

The 26th March is Purple day, a time to get people talking about epilepsy, raise awareness of the condition and raise vital funds.

You will be supported by our Community Fundraising team throughout your fundraising group journey.

We know that the workplace can be a real force for good. Charity partnerships can help motivate staff and give you something special to tell your customers and shareholders. We can help your employees get involved in our work. 

Amelia was the kindest, funniest, most thoughtful, mischievous, gentle and beautiful girl. She was full of vim and vigour. She was plucky, determined and feared little.

"When I was first diagnosed at the age of nine, I had no idea what epilepsy was, is or how it would affect the rest of my life."

When William was 10 months old, he had his first seizure. I was in the kitchen when my brother screamed for me. “He’s not breathing, I don’t know what happened!” I heard him yell. I ran in and grabbed him, held him in my arms on his side and waited for the paramedics to arrive. Twelve minutes. Twelve minutes and they were on our door with oxygen on him.

Create a dedicated fund in memory of a loved one, set up by a person living with epilepsy or by someone inspired by someone lived with epilepsy. All the money raised by our Fundraising Groups goes towards our charitable objectives.

If you don't yet have a Will, this advice can help you in the process of making one. If you already have a Will, you can find out how to update it to include a gift to Epilepsy Society.

Andrew Redhead was born in 1943 but in spite of having epilepsy as a child, he wasn't properly diagnosed until the age of 17.

Legacy gifts amount to more than a third of our voluntary income. This enables us to keep our helpline open to support people with epilepsy and helps fund our research.

We know that the workplace can be a real force for good. Charity partnerships can help motivate staff and give you something special to tell your customers and shareholders. We can help your employees get involved in our work. 

Thank you for taking part in Purple day! ​Donate below to pay in your Purple day funds. ​​​​​​​

A 1% gift helps us drive progress, enable support, increase impact and invest in the future.

If you don't yet have a Will, this advice can help you in the process of making one. If you already have a Will, you can find out how to update it to include a gift to Epilepsy Society.

We work with our corporate partners to deliver sustainable partnerships, that have genuine impact whilst meeting business and CSR objectives. Together we will build an innovative, long-term and engaging partnership that makes a real difference. Our aim is for your partnership to be both rewarding and fun for your employees.

There are so many ways to volunteer and make a difference to the lives of people affected by epilepsy. Whether you'd like to volunteer at our Chalfont Centre, or in your local community, we'd love to hear from you.

The volunteers at Epilepsy Society make an invaluable difference to the lives of the 92 residents who live on site, all of whom have epilepsy often as part of more complex needs.

Talking to the media about epilepsy is a valuable way of helping to increase public awareness. Would you be willing to talk to the press about your experiences of epilepsy? You can help us raise awareness by volunteering as a media contact and sharing your story.

Andrew Redhead was born in 1943 but in spite of having epilepsy as a child, he wasn't properly diagnosed until the age of 17.

Talking to the media about epilepsy is a valuable way of helping to increase public awareness. Would you be willing to talk to the press about your experiences of epilepsy? You can help us raise awareness by volunteering as a media contact and sharing your story.

From as little as £15 per year, we have a range of membership schemes for people affected by epilepsy, their family, friends and carers.

Many people with epilepsy say that the freedom of art helps them to express their experiences of seizures. For many the paintbrush is a powerful communication tool for experiences that are hard to explain in words.

Talking to the media about epilepsy is a valuable way of helping to increase public awareness. Would you be willing to talk to the press about your experiences of epilepsy? You can help us raise awareness by volunteering as a media contact and sharing your story.

Information on how you may use epilepsysociety.org.uk and other Epilepsy Society online services.

Modern slavery is a crime and a violation of fundamental human rights: all forms of modern slavery including human trafficking have in common the deprivation of a person's liberty by another in order to exploit them for personal or commercial gain.

From 6 April 2017, any employer in the UK with more than 250 employees is required by law to publish their gender pay gap annually, covering both pay and bonuses. We are committed to equality and inclusion, and we welcome the Government's requirements.

Epilepsy Review is our magazine for everyone affected by epilepsy. Articles cover developments in medical treatments and research, advice on how to stay well, topical articles about epilepsy, employment, the law, politics, culture, campaigns and humour from the epilepsy world. It is published twice a year and written by epilepsy specialists.

Discretionary housing payments may be available to some people on housing benefit, or the housing costs element of universal credit.

An Electroencephalogram (EEG) records the electrical activity of the brain by picking up the electrical signals from the brain cells. These signals are picked up by electrodes attached to the head and are recorded on paper or on a computer. The recording shows how the brain is working.

A clear care pathway to show you what to do from the first seizure to referrals and reviews.

This guide explains how to report side effects of anti-epileptic drugs through the Yellow Card Scheme. It covers what information to include when reporting side effects and where to get a Yellow Card.

Our vision is a full life for everyone affected by epilepsy. We want everyone affected by epilepsy to have the best opportunity for a full life – as free from seizures as possible. 

Read biographies for members of our board of trustees, president and vice president, and our senior management team including our CEO Clare Pelham (pictured above).

The National Society for the Employment of Epileptics (NSEE) was launched in 1892 by a group of London philanthropists and medical men.

Find out more about Epilepsy Society in the press, our extensive library of video and How you can become a media contact.

Doctors and scientists at Epilepsy Society are making a major contribution to the world's research into the causes, diagnosis and treatment of epilepsy, pioneering novel diagnostic techniques and making possible improvements in both surgical and medical treatment of the condition.

Contact us online for general, fundraising or training enquiries and to give feedback.

Doctors and scientists at Epilepsy Society are making a major contribution to the world's research into the causes, diagnosis and treatment of epilepsy, pioneering novel diagnostic techniques and making possible improvements in both surgical and medical treatment of the condition.

Meet our board of trustees including our Chair Peter Worthington who was appointed Chair of the board of trustees in November 2017.

Meet our president Countess Howe and our various vice presidents including Former British Prime Minister David Cameron.

Meet our senior team including our CEO Clare Pelham and our Medical Director Ley Sander who has who has been named as the world's leading expert on epilepsy in 2020.

We can offer spokespeople with a wide range of expertise in epilepsy ranging from medical care and research to social and political issues.

Find out more about Epilepsy Society in the press including national and regional press.

Paige is the Marketing and Communications Executive at Epilepsy Society helping us to grow our social community so that we can reach and help as many people affected by epilepsy as possible.

Nicola is responsible for editing and producing our membership magazine Epilepsy Review and writing content for our website and dealing with any newspaper and media enquiries.

Natasha is working at Epilepsy Society as our Digital Marketing Officer; helping to create and run campaigns, as well as extend the reach and effectiveness of the charity’s online presence.

Over the course of a history that spans three centuries, the DNA of both Epilepsy Society and Chalfont St Peter have become intrinsically entwined. The village is very much a part of the life blood of the charity and vice versa.

See the map of our Chalfont Centre as well as our location on Google maps and any information on site developments.

Read about the previous and upcoming charitable community events at Epilepsy Society's Chalfont Centre in Chalfont St Peter, Buckinghamshire.

We offer a very warm welcome to all in our community Coffee Shop. We sell a wide range of coffee, flavoured teas, milkshakes and smoothies to quench your thirst at very reasonable prices.

Doctors and scientists at Epilepsy Society are making a major contribution to the world's research into the causes, diagnosis and treatment of epilepsy, pioneering novel diagnostic techniques and making possible improvements in both surgical and medical treatment of the condition.

Use our interactive guide to the driving regulations for people with epilepsy in the UK to find out how the driving regulations apply to you.

Amelia Roberts was beautiful, vivacious and just 21 when she tragically died from a fatal seizure just before Christmas in 2018.

Emma Griffith explains how being supported by the Epilepsy Society's Chalfont Centre for a decade has helped her to turn her life around and encouraged her to share her story.

Neill Lowdon is an artist from Cornwall who has recently sold 35 of his paintings to raise money for us. Here, he talks about leaving a legacy to Epilepsy Society in his will.

Sarah has left temporal lobe epilepsy. She has decided to opt for surgery. 'All I want is my independence,' she says. 'I want to cook by myself, bath by myself and look after my two daughters without having to ask for help.'

When Leann Robb had her first seizure at the age of 24, her family's lives were turned upside down. 'It literally hit us like a bolt out of the blue,' says mum, Joanne Robb. 'We had not had any experience of epilepsy, we knew nothing about it. My husband Kenny and I were in a dark tunnel with no light at the end.'

At just nine years of age, Caiden Tanfield is one of Epilepsy Society's youngest fundraisers.

Duncan Weston is 62. He has lived with epilepsy for 50 years. He doesn't trust himself to take cash out of a high street bank machine as he knows he is likely to have a seizure mid-transaction and walk away leaving his card and his money in the machine.

Laura Grainger, 34, cannot remember her own wedding day, most holidays and birthdays, or the time she spent at university. The impact of her epilepsy means that memory loss is a huge factor in her life.

Kerry Pates was just 19 years old when she died of SUDEP. Karen Pates describes the impact of her daughter Kerry's death.

Nineteen-year-old Samantha Ahearn died of SUDEP (sudden unexpected death in epilepsy) just six months after her first seizure.

Owen Williams was 39 when he died in July 2014. His mother, Ro Williams, describes the impact of her son's death from SUDEP.

Just six weeks before her 18th birthday, Hazel Cooper was found dead by her mother. Julie describes what it was like finding out that her daughter, Hazel, had died suddenly from epilepsy.

Sereena Webb recalls the loss of her son Taylor, who lost his life to SUDEP at the age of nine.

Gareth rediscovered his passion for music because of his epilepsy.

Award-winning comedian with epilepsy has debut show launched on television.

Internationally renowned writer Peter talks about his early life as a gravedigger with epilepsy.

Edinburgh-based artist has produced a series of pictures which explores living with epilepsy.

Emma would like to increase the awareness of epilepsy.

STEPS resident Stephen designs a T-Shirt for BBC Children In Need.

Brother of comedian Russell Howard, Daniel, developed epilepsy as a result of a severe head injury when he was 10 years old.

Gina believes that her epilepsy helped her to embrace new career opportunities.

Michelle Hackett was 16 years old when she had her first baby, a little girl called Courtney. Michelle was taken into hospital with pneumonia and Courtney was born by Caesarean section.

Watch actress Jennie Jacques discussing the impact of her sister's epilepsy and what inspired her to fundraise and raise awareness of epilepsy.

My name is Georgina, I live in London and was diagnosed with epilepsy when I was 12 years old. I’ve worked in the film industry as a script supervisor for the past 6 years and love every minute of it.

When one child in a family has epilepsy it can have an impact on siblings too. Comedy king Russell Howard tells Nicola Swanborough how his brother’s seizures have helped shape his wicked sense of humour, while over the page, two sisters tell their moving story.

Michael Green has spent 10 years working as a nurse in the Bedouin community living in the Jordanian desert in spite of his own epilepsy.

Michael, 76, has unstable epilepsy and often goes into status epilepticus when having a seizure. His daughter, Paula, is the MP for Dewsbury and is the Chair of the All Party Parliamentary Group for Epilepsy (APPGE).

Christina Marshall uses her graphic design pieces to allow her to be more positive about epilepsy.

Taking daily exercise while on lockdown can pose extra challenges for anyone with uncontrolled seizures, as Lorraine found out.

Debbie Jackson is currently feeling positive about her epilepsy. She is a personal assistant at a media company in Canary Wharf and feels supported by her boss and colleagues. People have been very good in understanding her condition when she has had a few seizures at work, but this has not always been the case.

Stuart Watson, 39 from Howden in East Yorkshire, was so inspired by the support he received from our helpline that he decided to do a trek of the Great Glen Way in the Scottish Highlands and raise over £2500 for us.

Our specialist nursing care for adults with epilepsy is provided in Queen Elizabeth House at our Chalfont Centre in Buckinghamshire. In addition to their epilepsy, residents often have associated and additional complications, including physical and learning disabilities, brain injury and autism.

Our specialist nursing care for adults with epilepsy is provided in Queen Elizabeth House at our Chalfont Centre in Buckinghamshire. In addition to their epilepsy, residents often have associated and additional complications, including physical and learning disabilities, brain injury and autism.

Our specialist nursing care for adults with epilepsy is provided in Queen Elizabeth House at our Chalfont Centre in Buckinghamshire. In addition to their epilepsy, residents often have associated and additional complications, including physical and learning disabilities, brain injury and autism.

Complete this form to gain access to your fundraising pack including sponsorship forms, guides to fundraising and Epilepsy Society posters.

Epilepsy is not just one condition, but a group of many different 'epilepsies' with one thing in common: a tendency to have seizures that start in the brain.

Epilepsy is not just one condition, but a group of many different 'epilepsies' with one thing in common: a tendency to have seizures that start in the brain.

Epilepsy is not just one condition, but a group of many different 'epilepsies' with one thing in common: a tendency to have seizures that start in the brain.

Niall Moore, aged 36, will celebrate graduating today (Friday 31 July) with a Doctorate in Childhood Studies (DChild) from the School of Social Sciences, Education and Social Work at Queen’s University Belfast.