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What we want from NhWes

Thank you to everyone who wrote to their Labour MP asking them to come and see us at our stand at the Labour Party Conference.  We were inundated with MPs wanting to find out more about epilepsy and support our campaigns as a result of your invitations. This will really help to amplify the voices of people with epilepsy in parliament. 

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Treatment for ultra-rare form of epilepsy shows promising results

A late-stage study has shown promising results for the effectiveness of fenfluramine in people with an ultra-rare form of epilepsy - CDKL5 deficiency disorder (CDD). 

CDD affects approximately one in 40,000 to 60,000 live births. The disorder causes uncontrolled seizures and symptoms usually appear at six weeks of age, alongside learning and developmental issues.

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