Our Zach is Pride of Britain
Huge congratulations from all of us at the Epilepsy Society to Zach Eagling who has been recognised with a Pride of Britain Award for his tireless campaigning with the charity to make it a criminal offence to send seizure-inducing flashing images on social media.
Dual Breakthrough Therapy Designation in China and US for bexicaserin for the treatment of seizures in severe rare epilepsies
An investigational drug, bexicaserin has been granted Breakthrough Therapy Designation (BTD) by China’s Center for Drug Evaluation. The medicine has also been granted BTD by the U.S. Food and Drug Administration (FDA) for the treatment of seizures associated with severe, childhood-onset rare epilepsies.
More Than Seizures: A Collaborative Portrait of Epilepsy
Photographer Tolly Robinson speaks with fellow creative Alexander Thomas about documenting the unseen realities of epilepsy—and honouring the legacy of his friend Charlie Marriage - in a new photography exhibition.
What we want from NhWes
Thank you to everyone who wrote to their Labour MP asking them to come and see us at our stand at the Labour Party Conference. We were inundated with MPs wanting to find out more about epilepsy and support our campaigns as a result of your invitations. This will really help to amplify the voices of people with epilepsy in parliament.
New data report shows significant drop in valproate prescriptions
The latest Clinical Practice Research Datalink (CPRD) published this month by the Medicines and Healthcare Products Regulatory Agency (MHRA) shows a significant drop in valproate being newly prescribed to females and males between January 2018 and June 2024.
Fix it For Free
With the government pledging to review the NHS dental contract, Epilepsy Society is asking for a medical exemption from fees for people with epilepsy who damage their teeth as the result of a seizure. Between 50,000 and 100,000 people are affected and living with broken and damaged teeth.