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Managing your treatment

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Managing your treatment

Managing your treatment is an important part of managing your epilepsy, and seeing whether your medication is working. This might include having a care plan, including a treatment plan.

Care and treatment plans

A care plan is an overview of your epilepsy and its treatment and management. It includes information about your epilepsy and seizures and covers other issues that may be important to you such as education, work, driving, and starting a family. You should be offered a care plan, particularly if your epilepsy is recently diagnosed. This might be part of the letter that your specialist will write following an appointment. If you are not offered a care plan you can ask for one.

Part of a care plan includes a treatment (or medication) plan. This sets out how your epilepsy will be treated and usually includes how to start and increase your medication and what to do if it does not work or you have side effects. 

Your care plan is made by you and your specialist together. You should be given a copy of the plan which is usually also given to your GP. It should be reviewed and updated when needed.

How do I know if treatment is working?

Often the best way to measure how well your treatment is working is to look at whether your seizures have stopped or you are having fewer seizures.

Keeping a seizure diary can help to record how many seizures you are having, when they happen, if anything triggers them and if your medication is reducing or stopping them. 

If your treatment does not work or fully control your seizures, there are other treatment options that might be considered.

Monitoring epilepsy

Epilepsy reviews
You should be offered regular reviews of your epilepsy. If you are still having seizures, a review should be at least every six months with your specialist but, if your seizures become well controlled, you might have annual reviews with your GP.

ASM and osteoporosis
Some ASMs affect bone density in some people. If you have osteoporosis or a family history of osteoporosis, you may be offered a bone density test, and to have your calcium and vitamin D levels checked. 

Information updated: February 2022

Epileptic seizures

There are many different types of epileptic seizure. Any of us could potentially have a single epileptic seizure at some point in our lives. This is not the same as having epilepsy, which is a tendency to have seizures that start in the brain.