NICE approves life-changing new treatment for people with Lennox- Gastaut Syndrome
People with a rare form of epilepsy in England will now have a new treatment option to try following approval by NICE.
Men taking valproate no longer need sign off from two specialists
New guidance has been published around the prescribing of the epilepsy medication, valproate for men under the age of 55.
Scotland gets new drug for Lennox Gastaut syndrome – now England waits
Children over the age of two and adults with Lennox-Gastaut syndrome (LGS) in Scotland can now be prescribed the anti-seizure medication, fenfluramine.
Epilepsy Society research published in Brain Communications Journal
A study conducted by a team of researchers from the Epilepsy Society, including Professor Sanjay Sisodiya and Angeliki Vakrinou has been published in the Brain Communications Journal. The study explores the genetics of rare epilepsies including Dravet Syndrome.
Medication shortages in the news
As part of our medications shortages campaign, our CEO, Clare Pelham was interviewed on BBC Look North, alongside the mother of 44-year-old David Crompton who tragically died after being given an IOU for his epilepsy medication by his pharmacy.
Epilepsy Society writes to Health Secretary following a death linked to medicine shortages
The Epilepsy Society has written to Health Secretary Wes Streeting, following the death of a 44-year old man with epilepsy, after he was given an IOU for medication to control his seizures.