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Your feelings

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Your feelings

If you do feel down or worried about your epilepsy, you're not alone. Many young people with epilepsy may have the same worries that you have. Some people find that talking about their concerns can help. There are lots of ways that you can connect with other people and get support.

It doesn't matter who you decide to talk to, as long as you feel you can trust them and that they are good at listening. It could be a friend, a family member or your GP. Some people find it helpful to talk to a counsellor. Or you might like to call a helpline.

Whoever you talk to, it's OK to be unsure of what you want to say. Sometimes just having the time and space to say what you want can help to let off some steam or get your thoughts in order.

Getting support

  • If you want to know more about epilepsy, or talk to someone about your epilepsy, our confidential helpline offers information and emotional support.

Find out how other young people deal with their epilepsy

  • Visit  for videos, audio and text clips of young people taking about their experiences of epilepsy.

This information was reviewed by Professor Matthias Koepp, Professor of Neurology, University College London and Epilepsy Society. Epilepsy Society is also grateful to the young people who helped develop this information.

Information produced: November 2017

Someone calling the helpline

You can call our helpline on 01494 601 400.

Our Helpline is open five days a week, Monday to Friday 9am to 4pm, (Wednesday 9am to 7.30pm). 

You can also reach us by email

University and epilepsy

If you're considering going to university or if you’ve definitely decided that’s what you want to do, you’ll need to think about what this will mean for you in practical terms and about what support you might need, including financial support. Being well prepared will help you to make the most of your time at university.

Your epilepsy - now and next booklet

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Order or download our Your epilepsy - now and next booklet:

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