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Feelings, emotions and epilepsy

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Feelings, emotions and epilepsy

Let’s be honest, you probably didn’t plan on your university suitcase having ‘epilepsy’ in it. Having epilepsy is more than just having seizures. It can affect every part of your life and every aspect of you: physical, mental and emotional.

While you might recover from the impact of seizures, you might not feel OK with your epilepsy, or how it feels to live with it. You might want to know where you can get more support.

There’s no right or wrong way to feel about epilepsy. How you feel about it might change from month to month, or from moment to moment. It may depend on how often you have seizures and how they affect you. It might also depend on how those around you feel about your epilepsy, and what emotional support you get.

Talking about it

You may feel as though no one understands what epilepsy is like or how it feels to have it. You might want to talk about it or you might want to shut down and not even think about it any more. If your epilepsy is getting you down, talking to someone might help you. It doesn’t really matter who you decide to talk to, as long as you feel you can trust them and you think they are good at listening. Your university may have a counsellor you can talk to about how you are feeling.

Get in touch with other people

It can be really helpful to talk to other people who have epilepsy and to share experiences with them. This can help you feel that there are other people ‘out there’ who understand what you are going through. Here are some places you can get in touch with others:

  • Other young people share their experiences on the YouthHealthTalk website.
  • Call our confidential helpline, it can give you the time and space you need to say what you want, to let off some steam or to get your thoughts in order.
  • The Expert Patients Programme runs 'Staying Positive’ courses for young people with health conditions. The courses cover lots of topics from getting the best from your appointments to self-confidence and how you may feel about your condition.

Information produced: March 2019

University and epilepsy

If you're considering going to university or if you’ve definitely decided that’s what you want to do, you’ll need to think about what this will mean for you in practical terms and about what support you might need, including financial support. Being well prepared will help you to make the most of your time at university.

Want to know more?

Download the Emotional impact of epilepsy factsheet.