Mood and epilepsy
Epilepsy affects everyone differently. Some people with epilepsy may find that problems with their mood can affect their epilepsy and how it is managed. How you feel may be different and your view of epilepsy may also change over time.
Feelings about being diagnosed and living with epilepsy will vary from one person to another. Mood problems such as anxiety and depression are common in people with epilepsy. In some cases, there may be links between a person’s epilepsy and mood problems. Possible links include how epilepsy affects their life, how their brain is affected, and their genetic or family history. There are self-help strategies for mood problems and you can also ask for help.
When anxiety becomes a problem
Anxiety becomes a problem when you feel anxious most of the time and when it affects basic things such as eating, sleeping or being able to leave the house. If you are anxious, you may also feel restless and unable to relax, or have no energy or be easily tired. You may panic in certain situations. You may sleep badly or wake up too early in the morning. Your memory or concentration may become poor. You may feel easily irritated.
We all feel low and depressed sometimes, without it being a medical problem. Depression becomes a problem when the unhappy feelings don’t go away and it affects our daily life.
1 in 5 people in the UK have some form of depression at some point in their lives.
Sometimes depression is triggered by an upsetting or life-changing event, such as bereavement, unemployment, family problems, debt, an accident or an illness. Some people are more likely to become depressed than others because of a family history of depression. Frequent stress (too much pressure) may make depression more likely.
Links between epilepsy and mood
For some people, their epilepsy and mood problems are not connected but potential links are to do with how epilepsy affects their life.
Mood problems as a side effect of medication
Possible side effects of anti-epileptic drugs (AEDS) include mood changes, irritability, agitation or depression. However, with some people AEDs can improve their mood. The risk of you having a side effect may be lower than you think. If a side effect is listed as common, this means that, at the most, 1 in 10 people will get it and 9 in 10 people will not. The lists of side effects that come with AEDs may make you expect to have side effects, increasing your anxiety or low mood.
Talking therapies’ such as counselling, psychotherapy or group therapy may help reduce anxiety or depression and make life more manageable. Talking in confidence about your feelings about epilepsy may be helpful.
Talking about mood to your doctor
You may like to use our short form (pdf 826 KB) to talk to your doctor or nurse about how you feel.
Information produced: August 2017
Everyone feels anxious at times. When you are frightened or feel threatened, your heart beats faster, your muscles tense and your body prepares you to ‘fight’ the threat, or to run away from it – ‘flight’.
We all feel low and depressed sometimes, without it being a medical problem. Depression becomes a problem when the unhappy feelings don’t go away and it affects our daily life: eating, sleeping or being able to get out of bed.
Epilepsy and seizures can affect people in different ways. Support can mean finding understanding, ways to cope, or to feel more in control about living with epilepsy. Here are various ways that you can find support if you need it.