News

Presenter Daniel Kramer opens his documentary, Epilepsy and the Electric Spirit describing having a seizure. He’s at a bus stop on his way to a party and he’s carrying a large cheese plant. As the bus draws up, he notices the left side of his vision has gone completely hazy and scrambled. Daniel knows he is going to have a seizure. In this personal and revealing documentary the reality of epilepsy is laid bare and shows the human beings behind the condition that is still so misunderstood. 

Along with over 60 co-signatories, Epilepsy Society is writing to the Secretary of State for Health and Social Care calling for urgent action to tackle extreme heat in care homes.

Charities, care providers, and MPs have issued a stark warning to the government to implement a Cool Homes Plan for social care, or risk avoidable loss of life next summer. 

While many people have been receiving texts from their pharmacy when their prescription is ready to be collected, millions more can now get an alert on their smartwatch or mobile if they use the NHS app.  Nearly 2,500 chemists across England, including every ASDA and Boots pharmacy stores are participating.

Today, Wednesday 21 October, is SUDEP Action Day and the theme for this year is sparking open conversations around seizure safety and risk management. 

The Epilepsy Society has wrapped up a whirlwind month attending five of the major political party conferences, amplifying the voices of people with epilepsy. 

Hundreds of delegates, including government ministers, MPs, councillors, and charity representatives, visited our stands to learn more about epilepsy and the daily impact it has on people’s lives.