Treatment for ultra-rare form of epilepsy shows promising results
A late-stage study has shown promising results for the effectiveness of fenfluramine in people with an ultra-rare form of epilepsy - CDKL5 deficiency disorder (CDD).
CDD affects approximately one in 40,000 to 60,000 live births. The disorder causes uncontrolled seizures and symptoms usually appear at six weeks of age, alongside learning and developmental issues.
Australian Epilepsy Project using AI to improve outcomes for people with epilepsy
A new project in Australia is using AI to fast-track the time between diagnosis and seizure control, with the aim of improving outcomes for people with epilepsy. Advancements in technology are enabling the Australian Epilepsy Project to crunch decades of data and compare it with a patient's medical imaging, family history, cognitive and genomic markers.
Boosting clinical trials in the UK
Epilepsy Society has welcomed new plans to boost clinical trials in the UK as part of the NHS 10-year health plan.
Keep your cool – staying safe in the heat
A survey* carried out by the Epilepsy Society showed that 62 per cent of people with uncontrolled seizures experience an increase in their seizure activity during unusually hot weather.
It is important to make sure that you take sensible precautions to ensure that you stay cool, particularly if you know your epilepsy is sensitive to the heat. Here are a few tips that may help:
Valproate safety material and warning about risk to babies’ birth weight
Updated safety and educational materials have been published for the anti-seizure medication valproate*.
Patients to receive appointment reminders, screening invitations and test results through the NHS app
As part of the reforms to the NHS, millions more patients will receive appointments, screening invitations and other important information directly via the NHS App as part of the digital-first upgrade.