Planning and following journeys
This activity is about planning (working out) and following a journey, including using public transport, and whether severe anxiety or distress stops you from being able to go out. It is not about your physical mobility (covered in the mobility activity 'PIP - moving around').
A - Can plan and follow the route of a journey unaided 0 B - Needs prompting to be able to undertake any journey to avoid overwhelming psychological distress to the claimant 4 C - Cannot plan the route of a journey 8 D - Cannot follow the route of an unfamiliar journey without another person, assistance dog, or orientation aid 10 E - Cannot undertake any journey because it would cause overwhelming psychological distress to the claimant 10 F - Cannot follow the route of a familiar journey without another person, assistance dog or orientation aid 12
- 'Journey' means a local journey, whether familiar or unfamiliar. 'Follow' means having the mental ability to reliably follow a route, it does not mean the physical act of moving. If you need someone with you to prevent you harming yourself or others when making a journey, 11F might apply.
- This activity may not apply to you at all, or not all of the time. However, it might apply to you if your epilepsy or seizures affect your ability to think clearly or affect your senses, so that the activity is difficult or dangerous. It might only affect your ability to do this activity at certain times, such as during and after a seizure. It might also affect you if, for example, your medication affects your thinking, concentration, memory, or taking in information. It might also apply if you need supervision to be able to plan or follow a journey.
- Your safety is important. For example, this activity might apply to you if you always need someone with you when going out to keep you safe if you have a seizure, or if you are confused after a seizure and need help to complete your journey.
- ‘Psychological distress’ could mean severe anxiety about making a journey or going out alone. For example, the possibility of having a seizure and the risks associated with this, including accident and injury, might cause anxiety for some people which stops them going out.
Things to think about
What could happen to you if you have a seizure when planning or following a journey? For example, for people with focal impaired awareness seizures (previously called complex focal seizures) this might include wandering into the road. For people with tonic, atonic or tonic clonic seizures this might include falling into the road. What is the likelihood of this happening? Include any real examples of when this has happened, and how it affected you physically and mentally. This is important if the risks of having a seizure cause you anxiety, or mean that you do not go out of your house alone. If this applies to you, state clearly what could happen to you if you have a seizure. For example, rather than ‘I don’t go out alone’ you might say ‘I only go out if someone comes with me because…’
Does anything else about your epilepsy (including your seizures, recovery from seizures, medication side effects, or impact of your condition) affect your ability to do any of this activity? You can include any impact on:
- your concentration, motivation, thinking, or memory (for example if your awareness of danger is affected);
- your mood (for example, anxiety or depression, or fear about having a seizure during this activity); or
- any tiredness or confusion that you may have following a seizure.
Remember to include:
- whether you can do this activity reliably (safely, to an acceptable standard, repeatedly and in a reasonable time period).
- whether you need aids, appliances or help from another person to do this activity;
- how often your condition affects your ability to do this activity (the 50% rule); and
- the impact of any other conditions or disabilities that you have on this activity.
You will only get a single score for each category, so make sure that you include as much relevant information as possible. You can continue on a separate sheet of paper if you need to.
Information produced: July 2019
Whether or not you qualify for PIP depends on how your condition affects you in two ways: your 'daily living' and your 'mobility' (how you physically move).
Information about the daily living and mobility activities that form part of your PIP assessment criteria.
An important part of assessing your ability to carry out each activity is assessing whether you are able to do the activity ‘reliably’. Here, ‘reliably’ means that all of the following points apply.
PIP is a UK benefit for people over the age of 16, to help with any additional costs due to having a long-term disability or health condition.
If you have epilepsy you may be eligible to apply for benefits. This depends on what your epilepsy is like and how it affects you.
Universal Credit is now available to all new claimants (unless they get, or are entitled to get, Severe Disability Premium). It is a benefit for working-age people (usually 16 to 64 years) who are on a low income, or who are looking for work and will replace some existing benefits, listed below.