Photosensitive epilepsy
Photosensitive epilepsy is when seizures are triggered by flashing lights or contrasting light and dark patterns. Photosensitive epilepsy is not common but it may be diagnosed when you have an EEG test. Flashing or patterned effects can make people with or without epilepsy feel disorientated, uncomfortable or unwell. This does not necessarily mean they have photosensitive epilepsy.
How common is photosensitive epilepsy?
Around 1 in 100 people has epilepsy and of these people, up to 5% have photosensitive epilepsy. This is when seizures are triggered by certain rates of flashing lights or contrasting light and dark patterns. Photosensitive epilepsy is more common in children and young people (up to 5 times more than in later life) and is less commonly diagnosed after the age of 20.
What is photosensitive epilepsy?
This is when you have a seizure straightaway, caused by being exposed to flashing lights or patterns. An electroencephalogram EEG can help with diagnosis, and may include testing for photosensitive epilepsy. This usually involves looking at a light which will flash at different speeds but other triggers can be tested for in specialist centres. If this causes any changes in brain activity, the physiologist will stop the flashing light before a seizure develops.
What rate of flashing light can trigger seizures?
Between 3-30 Hertz (flashes per second) are the common rates to trigger seizures but this varies from person to person. While some people are sensitive at frequencies up to 60 Hertz, sensitivity under 3 Hertz is not common.
What patterns can trigger seizures?
Some people are sensitive to geometric patterns with contrasts of light and dark such as stripes or bars. Patterns are more likely to be a trigger if they are changing direction or flashing, rather than if they are still or moving slowly in one direction.
Flashing, flickering or patterned effects can make people with or without epilepsy feel disorientated, uncomfortable or unwell. This does not necessarily mean they have photosensitive epilepsy.
How is photosensitive epilepsy treated?
The most common way to treat photosensitive epilepsy is with anti-seizure medication (ASM) This is to lower the risk of having a seizure.
Possible triggers if you have photosensitive epilepsy
- Flashing or flickering lights or images between 3 and 60 hertz (flashes per second).
- A contrasting dark and light geometric pattern, such as black and white stripes or checks.
Factors that may increase the photosensitive risk
- Tiredness, stress or excitement. For example, playing a video game for a long time without breaks.
- The effect taking up all your field of vision. For example, being very close to a screen.
- A light and dark pattern moving quickly, or changing direction, creating a disorientating effect.
- Seeing the effect against a dark background, such as watching a screen in a darkened room.
If suddenly exposed to a trigger
- Covering one eye completely with your hand will greatly reduce the photosensitive effect.
What may have a photosensitive trigger?
Virtual reality is an experience created by a computer and stimulates a number of senses. Images flash very quickly and generally this is too quickly to trigger a seizure in people with photosensitive epilepsy. However, the field of view is large and so more of the eye is stimulated. This means that more of the brain may be affected and this may trigger a seizure.
TV and computer screens that flicker
- Cathode ray tube TVs (old style) which ‘refresh’ the image, if this causes a flicker rate between 3 and 60 Hertz (flashes per second).
- Faulty TVs or other screens that flicker.
- A flashing image on a computer screen or game.
Patterns in the natural environment
- Sunlight through trees.
- Sunlight through blinds.
- Sunlight on water.
- Railings, escalators, or other structures creating repetitive patterns as you move past them.
- Rotating wind turbine blades, if certain weather conditions occur together with other specific factors, particularly for smaller blades that rotate faster.
Flashing or flickering lights or images
- Cameras with multiple flashes or many cameras flashing at once. Single or double flashes are not likely to pose a risk.
- Strobe lights at performances or in nightclubs.
- Lights flickering, such as faulty fluorescent tubes and dimmers.
- Fireworks, if they create a high enough flash rate.
- Flashing bicycle lights or other LED lights against a dark background, and the effect fills your vision.
- Several circuits of festive lights flashing together could increase the flash rate.
Reducing the risk of a photosensitive trigger
The environment and how you use a screen
- Use a flatscreen TV or computer monitor.
- Take regular breaks from the screen.
- Sit well back from the screen.
- Use a remote control to change channels.
- Watch TV or use a screen in a well-lit room.
- Watch 3D TV without other TVs or screens being visible. Remove 3D glasses before switching channels or looking at another screen.
- Use the settings in internet options to control moving images in your browser.
Special glasses do not stop photosensitivity in a person, but they may help to reduce the effect.
- An optometrist can prescribe coloured or photochromic glasses (darkened lenses) to reduce light sensitivity or visual distortions. The choice of colour of the lenses can, in special circumstances, be tailored to the individual.
- Polarising sunglasses reduce reflection and glare such as sunlight on water.
UK regulations
- Ofcom regulations require that TV programmes and news stories have a warning if there is going to be a high level of flashes in the programme.
- The Health and Safety Executive recommends that strobe lighting, in clubs or at public performances, flashes at a maximum rate of four Hertz (flashes per second) or less.
What is unlikely to be a photosensitive trigger?
Triggers are individual, but the following sources in themselves are not generally likely to trigger photosensitive seizures.
- UK TV programme content - Ofcom regulates material shown on TV in the UK. The regulations restrict the flash rate to three per second or less, and they also restrict the area of screen allowed for flashing lights or alternating patterns.
- Digital TV and plasma screens - adjusting the brightness down on some screens can be helpful if you have photosensitive epilepsy.
- Modern computer or TV screens do not flicker, or have a very high flicker frequency. Flatscreen monitors, such as laptops, have a liquid crystal display (LCD) that does not flicker, so are even less likely to trigger seizures.
- Cinema and hand-held screens. Due to the size of the screen and the low intensity of the projection, it is rare for seizures to be triggered by films in a cinema, or by hand-held miniature screens.
- 3D cinema films - images are projected separately at each eye, reducing the already low intensity of the projection even further, and so the risk of a 3D film triggering a seizure is about the same as a normal cinema film.
- Interactive whiteboards are unlikely to trigger a seizure, unless another flickering light source in the room reflects onto the whiteboard.
If you have a product that you are concerned may trigger photosensitive seizures, Cambridge Research Systems Ltd offer the HardingFPA, which is a suite of applications for compliance with international guidelines on Flashing and Spatial Patterns in Broadcast Video, including Ofcom, ITU, NAB-J and ISO.
Epilepsy Society is grateful to Professor Stefano Seri, Emeritus Professor of Clinical Neurophysiology and Developmental Neuropsychiatry, College of Health and Life Sciences, Aston University, who reviewed this information
Information produced: July 2023
Sophie's Story
Sophie Harries, 22, is a dietitian from Somerset. She was diagnosed with photosensitive epilepsy at the age of 15. She explains how it affects her life.
"When I was first diagnosed with photosensitive epilepsy, social media wasn't as big as it is now, so it wasn't such a problem for me. Once I went to uni I had to be careful to avoid strobe lighting so couldn't go out clubbing with my friends.
"That is still the case, but now I have to be careful of any videos uploaded to social media that contain strobe lighting or flashing imagery. The videos tend to play automatically putting me at risk of a seizure. If my friends have been out clubbing I have to avoid social media for a while.
"But so much of the shared content can cause a problem. There was a recent trailer for a film which contained flashing lights. I reported it to Instagram but they just said it wasn't breaching their current terms of usage.
"You can un-follow posts but they still tend to follow you around. For a 15 year old today it is an absolute minefield. Young people are permanently on social media with friendship groups. It is their way of finding out who they are. If I was 15 years old today and just diagnosed with photosensitive epilepsy, I would have to avoid social media altogether or risk lots of seizures."
Safeguarding people from online harms
#ZachsLaw
In September 2023, the Online Safety Bill, including Zach's Law, was passed. This is a huge win for all of us at the Epilepsy Society, and especially for Zach.
Want to know more?
Download our Photosensitive epilepsy factsheet (pdf 687KB)
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Epilepsy and staying safe online
As social media continues to play an increasingly large role in modern life, this can bring with it extra challenges for people with epilepsy, especially for those who have photosensitive epilepsy. Here are some simple steps you can take to make using social media a safer experience.