A book about what? Why? Oh! There’s always an oh! I wrote a memoir about living with epilepsy. Living with epilepsy: a contradiction in terms? Would the word ‘surviving’ be more appropriate? Perhaps, for some, for many. When the idea was first suggested to me I laughed out loud. That nervous laugh, the one wreaking of self doubt and ambivalence. Then, after a particularly bad cluster of seizures I decided to give it a go- I had nothing to lose and there’s only so many times you can watch Bruce Willis save the world barefoot.
Dr Hugh Selsick is a consultant psychiatrist working in sleep medicine, based at the Royal London Hospital for Integrated Medicine. Here he talks about insomnia in people with epilepsy, and how a type of therapy, CBT-i, can be used to combat sleeping problems.
Dr Simona Balestrini, the Muir Maxwell Trust Research Fellow at Epilepsy Society and Honorary Clinical Associate Professor at UCL Queen Square Institute of Neurology, has embarked on a three year project using a pioneering technique to look at the activity of the brain in people with epilepsy. Here she explains what she hopes to achieve in her work with Transcranial Magnetic Stimulation (TMS) used in conjunction with electroencephalography (EEG).
Esther Bailey has been determined to pursue a career in music, even though her VNS (vagal nerve stimulation) affects her voice and means that she can only sing for 10 minutes at a time. Now the 22 year old has recorded her own CD 'Tonic'. Here she talks about her epilepsy and singing.
Mel talks about her experience from being first diagnosed with epilepsy, to becoming pregnant and seeking treatment and support from Epilepsy Society at our Sir William Gowers medical centre.
If you travel on the London Underground or across the capital by bus, you may recognise Tom's face. He has been part of Transport for London's Priority Seating Campaign which aims to raise awareness of hidden disabilities on public transport. Tom has been the face of epilepsy. Here he talks about his epilepsy and the difficulties of taking a priority seat when you are a healthy looking young man.