Personal stories

Amelia Roberts was beautiful, vivacious and just 21 when she tragically died from a fatal seizure just before Christmas in 2018.

Niall Moore, aged 36, will celebrate graduating today (Friday 31 July) with a Doctorate in Childhood Studies (DChild) from the School of Social Sciences, Education and Social Work at Queen’s University Belfast.

Sarah has left temporal lobe epilepsy. She has decided to opt for surgery. 'All I want is my independence,' she says. 'I want to cook by myself, bath by myself and look after my two daughters without having to ask for help.'

Christina Marshall uses her graphic design pieces to allow her to be more positive about epilepsy.

Muir Maxwell has had severe epilepsy since he was a baby and, at 23, is unaware of how his experiences have changed the lives of many children like him. But here, his mum, Ann, explains how a Trust, inspired by Muir, has funded vital epilepsy services and still, today, makes possible some of our groundbreaking genomic research at the Epilepsy Society.

Michael, 76, has unstable epilepsy and often goes into status epilepticus when having a seizure. His daughter, Paula, is the MP for Dewsbury and is the Chair of the All Party Parliamentary Group for Epilepsy (APPGE).