New focus group provides purple feedback for Epilepsy Society
As a charity supporting people with epilepsy, it is very important that we listen to the voices of those with a lived experience of the condition.
This is particularly essential as we shape campaigns, create messages around epilepsy, produce new materials for fundraising and ensure that the charity is fit for purpose.
So, we have set up a brand new focus group – Purple Advocates – to help us sense check our new projects and ensure they sit comfortably with those affected by epilepsy.
Purple Advocates is made up of a group of seven people, all with epilepsy, from a variety of backgrounds and geographical areas. We have already held our first online meeting, so the conversation is rolling and we hope that regular engagement and feedback will enrich our work and make it truly person-centred.
Shaping a better world
We would like to thank our pioneering ‘Magnificent Seven’ who have stepped up to the plate to help us shape a better world for people with epilepsy.
Jonny Anders-Cannon, Director of Development at the charity, is championing the group. He said: “It is always humbling and inspiring to hear direct from the people we support. Our first Purple Advocates meeting has set the scene for some lively discussion and honest feedback and that will only enhance the way we support the wider community of people with epilepsy. We look forward to consulting the group and seeking their views on a wide range of issues about epilepsy.”