We are Epilepsy Society. The UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care.
What we do

Cutting edge research
Epilepsy Society is unique in bringing together experts from around the world to form a powerhouse multidisciplinary team who contribute to a wide ranging spectrum of research.

Advocacy
We are a voice for people with epilepsy, striving to push epilepsy up the political agenda and bring about change at government level.

Leading care provider
Our range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes.

Epilepsy support
Our confidential epilepsy helpline and online information provide support to people who are affected by epilepsy.
Our research
Genomics
Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme.
Therapeutic Drug Monitoring (TDM)
Therapeutic drug monitoring (TDM) is an area of clinical chemistry that specialises in measuring medication levels (concentrations) in patients, usually through blood samples but also through saliva samples.
Research
The ultimate goals of our current research are to spearhead personalised treatment and to incorporate genomic diagnosis into the NHS for people with epilepsy.
Latest news
Free online courses for friends and family
At Epilepsy Society we understand how epilepsy can have much wider implications for family members and friends. We are piloting our first, free, online training course on 29th May as part of National Epilepsy Week. Other dates will be available shortly.
Let’s talk about epilepsy
On 10 May, Emily is competing in the challenging Nuclear Race to raise money for the Epilepsy Society, after benefiting from treatment at the Chalfont Centre. Here she tells her story and explains why she is determined to raise awareness of epilepsy through radio interviews.
Epilepsy Society appoints Transformation Director to help revolutionise treatment of epilepsy
We are thrilled to announce that Sanjay Sisodiya has been appointed to the new role of Transformation Director at the Epilepsy Society. Professor Sisodiya will combine this role with his clinical and research responsibilities at UCLH and UCL. This is as part of our much-valued partnership with UCLH and UCL that brings so many benefits to people with epilepsy.
Epilepsy Society exhibition at House of Commons
We are holding an exhibition about epilepsy in the House of Commons in May and we need your help to make sure that all 650 MPs come and visit us.
Climate change and sleep
Our Director of Genomics, Professor Sanjay Sisodiya, is a co-author of a Nature Review Perspective, exploring how climate change is affecting human health globally. In this Perspective, the research team explored how changing weather patterns resulting from climate change affect sleep.
New study shows how our genes could help explain drug resistance in epilepsy
The Epilepsy Society has welcomed the findings of an international study that throws new light on why some people with focal epilepsy do not respond to anti-seizure medications.
Personal stories
Jade's story
Jade Davies worries about whether her son's health problems may have been caused by her epilepsy medication, even though the drugs she was taking during pregnancy are considered to have a safer profile.
Simon's story
Inner Strength and Self-Belief – Confessions of a Marathon Runner with Epilepsy.
Becca's story
Sweet Success! How Becca and the amazing team at Gemini Chocolate raised an incredible £1,000 for the Epilepsy Society.

" They couldn't understand why going out into the sunlight would bring on seizures - until our genetic testing revealed the cause of Daniel's epilepsy. "
Genetic testing could mean a new world of personalised treatment that transforms lives. By understanding more about each person’s genes, we will understand more about their epilepsy and how to treat it.