New online shop!
Check out our brand new online shop, packed with stylish t-shirts, cosy hoodies, and must-have accessories. Every item you buy helps support our life-changing work.
We are Epilepsy Society. The UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care.
What we do
Cutting edge research
Epilepsy Society is unique in bringing together experts from around the world to form a powerhouse multidisciplinary team who contribute to a wide ranging spectrum of research.
Advocacy
We are a voice for people with epilepsy, striving to push epilepsy up the political agenda and bring about change at government level.
Leading care provider
Our range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes.
Epilepsy support
Our confidential epilepsy helpline and online information provide support to people who are affected by epilepsy.
Our research
Genomics
Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme.
Research
The ultimate goals of our current research are to spearhead personalised treatment and to incorporate genomic diagnosis into the NHS for people with epilepsy.
Therapeutic Drug Monitoring (TDM)
Therapeutic drug monitoring (TDM) is an area of clinical chemistry that specialises in measuring medication levels (concentrations) in patients, usually through blood samples but also through saliva samples.
Sodium valproate
Sodium valproate is an epilepsy medication prescribed for all seizure types including absence, myoclonus and tonic clonic seizures. New regulations have been introduced by the Medicines and Healthcare products Regulatory Agency (MHRA) around the way in which the drug, sodium valproate is prescribed. Find out about the changes and how they might affect you.
Latest news
What we want from NhWes
Thank you to everyone who wrote to their Labour MP asking them to come and see us at our stand at the Labour Party Conference. We were inundated with MPs wanting to find out more about epilepsy and support our campaigns as a result of your invitations. This will really help to amplify the voices of people with epilepsy in parliament.
New data report shows significant drop in valproate prescriptions
The latest Clinical Practice Research Datalink (CPRD) published this month by the Medicines and Healthcare Products Regulatory Agency (MHRA) shows a significant drop in valproate being newly prescribed to females and males between January 2018 and June 2024.
Fix it For Free
With the government pledging to review the NHS dental contract, Epilepsy Society is asking for a medical exemption from fees for people with epilepsy who damage their teeth as the result of a seizure. Between 50,000 and 100,000 people are affected and living with broken and damaged teeth.
Death of the Duchess of Kent
We are deeply saddened to hear of the passing of Her Royal Highness, The Duchess of Kent. Our own Kent House, which is now the Epilepsy Society's training centre was named in her honour.
Party Conferences 2025 – we need you!
Epilepsy Society is hosting events at this year’s Labour and Liberal Democrat party conferences to push epilepsy up the political agenda. We need your help to spread the word. Please let your MP know we are going to be at the party conferences and ask them to attend our meetings or if they are going to be at the Labour Party Conference, come and see us at Stand B7.
New research suggests similar brain patterns in seizure-linked psychosis and schizophrenia
Latest research at the Epilepsy Society using pioneering research equipment has shown parallels between people with seizure-linked psychosis and schizophrenia.
1,200 die every year in the UK from epilepsy related deaths
Personal stories
Ben's story
Five race journey: raising awareness of epilepsy one step at a time.
Helena's story
Helena is an illustrator, graphic designer and animator currently living and working in London. Here she shares how her temporal lobe epilepsy was undiagnosed for seven years and its impact on her.
Ella's story
Unlikely career inspiration: from retail to relationship therapist.
" They couldn't understand why going out into the sunlight would bring on seizures - until our genetic testing revealed the cause of Daniel's epilepsy. "
Genetic testing could mean a new world of personalised treatment that transforms lives. By understanding more about each person’s genes, we will understand more about their epilepsy and how to treat it.
